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World FSHD Awareness Day
May 16, 2016
The first ever World FSHD Awareness Day.
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Potential Biomarkers
May 14, 2016
What should we use to track the benefits of a treatment in clinical trials for FSHD?
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Grant Awarded to Expand FSHD Patient Registries
Apr 29, 2016
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
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GiveBIG (Extended) Today!
Apr 20, 2016
Put a phone reminder and mark your calendars for the Seattle GiveBIG where every donation is stretched further by matching dollars.
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Friends of FSH Research Summit Q&A
Apr 15, 2016
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
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aTyr announces initial results in FSHD trial
Apr 8, 2016
aTyr pharma has encouraging news regarding a possible treatment for FSHD using a novel protein-based biologic drug.
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Progress Update: FSHD myofibers cultured from human xenografts
Mar 24, 2016
Dr. Robert Bloch provides an update on his research into xenografting.
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Participate in FSHD research: UW/Children's research study
Feb 23, 2016
FSHD clinical research project needs patients to complete study
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Education grant to Robert Kao
Feb 15, 2016
Grant for curriculum development and online resources for education by Robert Kao
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Leap Year Summit
Feb 6, 2016
Upcoming meeting to move research in the direction of treatments.
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Spring Green Art Fest - May 6/7
Feb 1, 2016
Treat yourself and your garden friends to a day of garden delights at the lovely Lynnwood Convention Center.
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"FSHD in 2016: Catalyzing Change in the Research Community" pre-auction event
Jan 17, 2016
A discussion of the current research projects and informal discussion with Friends of FSH Research
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Research Funding: Joel Chamberlain looks for DUX4 in humans
Nov 4, 2015
Dr. Chamberlain will be investigating the how DUX4 expression in humans relates to disease pathology.
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We'll Rumba for Research
Oct 21, 2015
Our 12th annual FiSHing for a Cure Auction and Gala will have the theme of "A Night in Havana". Don't forget your passports!
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Dr. Block to Present at International FSH Research Conference
Oct 3, 2015
Dr. Block will present a short talk entitled "Global Initiatives to Accelerate FSH Research" to introduce a panel discussion with the FSHD Champions
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Research Publication: Catching DUX4 red (or green)-handed
Sep 2, 2015
Researchers at the University of Washington follow DUX4 - the real DUX4 - that's cool.
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Research Publication: A glimpse into SMCHD1 function
Aug 12, 2015
Researchers in Australia have carried out some important experiments towards our understanding of the FSHD2-causing gene, SMCHD1.
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Research funding: a collaborative effort to silence DUX4
Jul 11, 2015
An industry/academic collaboration to test a lead compound in a potentially robust animal model of FSHD.
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The state of FSH research: update for Toronto patients and families
Jul 11, 2015
An informal group discussion will be held in Toronto.
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Carving a path to cure FSH Muscular Dystrophy: from molecular mechanisms to patients
Jul 11, 2015
Dr. Block will be leading a discussion about FSH Research at the University of Toronto.