World FSHD Awareness Day

Posted by George Shaw on May 16, 2016

Friends of FSH Research, along with the international alliance FSHD Champions, of which Friends is a founding member, has declared June 20th World FSHD Awareness Day.

On the note of Awareness, Lexi Pappas kindly gave permission to post her 3 minute speech on Living with FSHD for her Public Speaking Colloquium Preliminaries at school.