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Jun 19, 2021, 2:18 PM
Panel discussion video with various stakeholders lead by Dyne Therapeutics.
Jun 18, 2021, 2:23 PM
World FSHD Awareness Day 202, featuring the Jones Lab free FSHD test diagnostic.
Jun 19, 2020, 5:16 PM
Dyne has produced a wonderful "Fireside" video for World FSHD Day.
Jun 25, 2018, 1:30 PM
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
Jun 20, 2017, 6:28 PM
Washington State Governor Jay Inslee proclaims June 20th "FSHD Awareness Day."
Jun 8, 2017, 6:25 PM
Since 2004 efforts have been made locally to infuse the Seattle research community with funds for FSHD research.
May 1, 2017, 4:28 PM
Join us as we recognize the researchers and their teams.
Jun 20, 2016, 5:51 PM
Seattle Mayor Ed Murray and US Senator Maria Cantwell pay tribute to the first ever World FSHD Awareness Day.
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