Search Results
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World FSHD Day - Interview with Rick & Terry
Jun 20, 2024, 6:39 PM
FSHD Straight Talk: 2024 World FSHD Special!
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Dyne Therapeutics - World FSHD Day Panel Discussion
Jun 19, 2021, 2:18 PM
Panel discussion video with various stakeholders lead by Dyne Therapeutics.
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World FSHD Day 2021
Jun 18, 2021, 2:23 PM
World FSHD Awareness Day 202, featuring the Jones Lab free FSHD test diagnostic.
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World FSHD Day Newsletter
Jun 20, 2020, 12:39 PM
United for a Cure.
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World FSHD Day
Jun 19, 2020, 5:16 PM
Dyne has produced a wonderful "Fireside" video for World FSHD Day.
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World FSHD Day
Jun 4, 2019, 2:19 PM
World FSHD Awareness Day.
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Where We Are
Jun 25, 2018, 1:30 PM
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
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World FSHD Day
Jun 15, 2018, 1:00 AM
World FSHD Awareness Day.
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World FSHD Day Proclamation
Jun 20, 2017, 6:28 PM
Washington State Governor Jay Inslee proclaims June 20th "FSHD Awareness Day."
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Friends of FSH Research recognizes local researchers
Jun 8, 2017, 6:25 PM
Since 2004 efforts have been made locally to infuse the Seattle research community with funds for FSHD research.
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World FSHD Day Awards Reception
May 1, 2017, 4:28 PM
Join us as we recognize the researchers and their teams.
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World FSHD Awareness Day
Jun 20, 2016, 5:51 PM
Seattle Mayor Ed Murray and US Senator Maria Cantwell pay tribute to the first ever World FSHD Awareness Day.
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World FSHD Awareness Day
May 16, 2016, 4:28 PM
The first ever World FSHD Awareness Day.