Apr 29, 2016, 3:56 PM
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
Apr 20, 2016, 3:46 PM
Put a phone reminder and mark your calendars for the Seattle GiveBIG where every donation is stretched further by matching dollars.
Apr 15, 2016, 2:53 PM
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
Apr 8, 2016, 2:39 PM
aTyr pharma has encouraging news regarding a possible treatment for FSHD using a novel protein-based biologic drug.