Research Institutes

Fields FSHD and Neuromuscular Research Center:

• University of Rochester and Leiden University

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center at:

• University of Rochester
• University of Washington
• University of Iowa
• Children's National Medical Center (Washington, DC)

Announcement of the Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center at:

• University of Rochester
• University of Pennsylvania
• MDA Press Release regarding the Establishment of the Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers

University of Washington:

• Department of Neurology

Additional FSH Resources

• FSHD Canada Foundation
• National Registry of MD and FSH Patients and Family Members
• Groupe FSH AMIS FSH EUROPE
• FSHD Global Research Foundation
• MDA Resources for Facioscapulohumeral Muscular Dystrophy
• FSHD Society
• Muscular Dystrophy Canada
• Wikipedia: Facioscapulohumeral Muscular Dystrophy
• Facts About Facioscapulohumeral Muscular Dystrophy
• FSH-MD Support Group
• The Dutch FSHD Foundation
• FSHD Europe: The European voice of people with FSHD
• A Guide for Schools: An informative pamphlet by the FSHD Society.

Canadian FSHD Network — Anne Harland

• 39 Kirkwood Crescent
  Caledon, Ontario
  L7C 1B9
  Canada
  harland.milne@sympatico.ca
  905 843-1403

Genetics

• Genetics Alliance
• Disease InfoSearch

Mobility
(as in the important task of keeping mobile and fit)

• CIS Aquatics Community Integrated Services Aquatic Therapy

Medical Devices
(for informational purposes only with no implied endorsement)

• Mobility Devices Whitepaper by Brian Glaister of Cadence Biomedical (formerly EETech). Also refer to an inspiring article in OandP on their human-powered kinetic orthosis.
• Rebound Ankle Brace
• MagicWheels
• WalkAide
• BlueRocker

Other

• The Seattle Foundation (Give BIG)