Mission Statement

Friends of FSH Research a 501 (c) (3) organization is working to impact the lives of those affected by FSH Muscular Dystrophy by financially supporting FSHD research.

Purpose Statements

• To encourage, promote and fund increased scientific and clinical research of Facioscapulohumeral Dystrophy, or FSHD.
• To conduct fund raising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to help advance the study and understanding of FSHD, with the goal of identifying treatment and a cure for the disease.
• To disseminate information about FSHD and encourage additional public support for FSHD research by raising public awareness of the need for more research funding.