Accelerating Research Since 2004

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Latest News
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Feb 17, 2024
An update on the MOVE FSHD study.
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Feb 17, 2024
Dr. Heher's final report on very interesting data regarding oxidative stress.
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Feb 1, 2024
Dr. Chamberlain is honored by the MDA with the 2024 Legacy Award for Achievement in Research.
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Jan 30, 2024
Dr. Arends provides an update to current work.
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Oct 10, 2023
Latest update from the MOVE grant.
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Sep 19, 2023
We have developed a computational cellular model of FSHD, based on a mechanism where expression of DUX4 (currently the main target for FSHD therapy) leads to muscle cell death.