Accelerating Research Since 2004

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Latest News
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Aug 4, 2024
MOVE FSHD study update.
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Jul 11, 2024
Patient study update by Dr. Kyba after a Covid hiatus.
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Jun 27, 2024
Findings indicate selective interactions of RNA binding proteins with HSATII RNA, which may impact mRNA processing pathways downstream of DUX4 expression; and that HSATII RNA structure dictates protein recruitment.
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Jun 20, 2024
FSHD Straight Talk: 2024 World FSHD Special!
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May 30, 2024
First year progress.
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May 18, 2024
The progress report highlights advancements in constructing an MRI data-lake for studying Facioscapulohumeral Muscular Dystrophy (FSHD) using AI segmentation techniques.