Accelerating Research Since 2004

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Latest News
Apr 6, 2023
Final update by Dr. Ozes of Altay Therapeutics.
Mar 23, 2023
FlexFund grant on support for continued development of low-cost FSHD diagnostic test.
Feb 5, 2023
This large study will be a big achievement in the FSHD community, a reality that has been made possible by the support from Friends of FSH Research.
Dec 17, 2022
New Publication from Grant Recipient: Professor Zammit at King's College
Oct 31, 2022
A thank you letter from Dr. Bloch.
Oct 28, 2022
Final report of year one.