Accelerating Research Since 2004

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Latest News
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Jun 4, 2026
Update from the Tapscott lab on viral-like particles.
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Jun 4, 2026
Final report on development of Talus Bio's drug screening technology.
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May 8, 2026
Development of an animal model that recapitulates the progression of FSHD in humans, and possible activity of T & B Cells.
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May 8, 2026
Histone Therapeutics is making progress with 3R-ON technology.
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Apr 24, 2026
Latest MOVE FSHD Study update.
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Jan 30, 2026
Final project report.