Accelerating Research Since 2004

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Upcoming Events
Feb 3, 2024 to Feb 3, 2024
Annual Auction at the Bellevue Hyatt Regency - Evergreen Ballroom
Latest News
Oct 10, 2023
Latest update from the MOVE grant.
Sep 19, 2023
We have developed a computational cellular model of FSHD, based on a mechanism where expression of DUX4 (currently the main target for FSHD therapy) leads to muscle cell death.
Jul 5, 2023
Initial progress update.
Apr 6, 2023
Final update by Dr. Ozes of Altay Therapeutics.
Mar 23, 2023
FlexFund grant on support for continued development of low-cost FSHD diagnostic test.
Feb 5, 2023
This large study will be a big achievement in the FSHD community, a reality that has been made possible by the support from Friends of FSH Research.