Jun 19, 2021, 2:18 PM
Panel discussion video with various stakeholders lead by Dyne Therapeutics.
Clinical trial network aims to speeding up development of effective treatments for rare type of muscular dystrophy
Jun 18, 2021, 3:34 PM
Article published by University of Kansas Medical Center provides insight into work by Dr. Jeffrey Statland, partially supported through multiple grants from Friends of FSH Research.
Jun 18, 2021, 2:23 PM
World FSHD Awareness Day 202, featuring the Jones Lab free FSHD test diagnostic.
Jun 10, 2021, 10:01 AM
Dr. Lek provides a final update to her screening grant.
Progress Update: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment
Jun 4, 2021, 10:58 AM
Dr. Tawil provides an update to his multi-year grant.
Jun 4, 2021, 10:33 AM
Dr. Tapscott provides an update to his multi-year grant.