Jun 25, 2018, 1:30 PM
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
Jun 20, 2018, 3:00 AM
Dave Lukas describes his transformation into an advocate for those with FSHD and participation in clinical trials.
Jun 18, 2018, 9:59 AM
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
Jun 15, 2018, 1:44 AM
Grant recipient Premi Haynes discusses her work and interest in FSHD.
Jun 15, 2018, 1:00 AM
World FSHD Awareness Day.
Jun 1, 2018, 7:48 AM
Genea Biocells announced that it has been granted Orphan Drug Designation by the U.S. Food and Drug Administration (FDA) for its therapeutic candidate, GBC0905,