Search Results
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Where We Are
Jun 25, 2018, 1:30 PM
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
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Strength, Responsibility and Progress
Jun 20, 2018, 3:00 AM
Dave Lukas describes his transformation into an advocate for those with FSHD and participation in clinical trials.
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2018 International Research Congress and Research Planning Meeting
Jun 18, 2018, 9:59 AM
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
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Ask the Expert with Dr. Premi Haynes
Jun 15, 2018, 1:44 AM
Grant recipient Premi Haynes discusses her work and interest in FSHD.
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World FSHD Day
Jun 15, 2018, 1:00 AM
World FSHD Awareness Day.
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Genea Biocells Announces FDA Orphan Drug Designation for GBC0905 for the Treatment of FSHD
Jun 1, 2018, 7:48 AM
Genea Biocells announced that it has been granted Orphan Drug Designation by the U.S. Food and Drug Administration (FDA) for its therapeutic candidate, GBC0905,