World FSHD Day

Dyne Therapeutics logoDyne Therapeutics has collected some amazing stories and videos from people living with FSHD. They have started posting them on their social media (primarily Twitter and FB) in order to help raise awareness about the day and the disease. They have also put together a video capturing a Zoom fireside chat (in this time of Covid-19) they held with three families living with FSHD, and the entire Dyne team in their World FSHD Day tees. It’s a short, 8.5 minute version of the full hour, but it does a nice job of introducing the disease burden and answers to some of the questions that will be asked during the PFDD meeting later this month.

Please follow the link: