![#](https://fshfriends.org/application/files/2415/2692/0861/University_of_Rochester_Medical_Center_-_Registry_logo.png)
Aug 26, 2016
258 members of the URMC Registry completed a survey last year. Results indicate that 79% of FSHD patients and 68% of DM patients experience pain.
![#](https://fshfriends.org/application/files/5615/2563/7523/Hugh_Dawkins.png)
Aug 20, 2016
Small but critical grant awarded two key stakeholders in the push for FSHD trial readiness.
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