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Where We Are
Jun 25, 2018
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
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Strength, Responsibility and Progress
Jun 20, 2018
Dave Lukas describes his transformation into an advocate for those with FSHD and participation in clinical trials.
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2018 International Research Congress and Research Planning Meeting
Jun 18, 2018
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
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Ask the Expert with Dr. Premi Haynes
Jun 15, 2018
Grant recipient Premi Haynes discusses her work and interest in FSHD.
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World FSHD Day
Jun 15, 2018
World FSHD Awareness Day.
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Genea Biocells Announces FDA Orphan Drug Designation for GBC0905 for the Treatment of FSHD
Jun 1, 2018
Genea Biocells announced that it has been granted Orphan Drug Designation by the U.S. Food and Drug Administration (FDA) for its therapeutic candidate, GBC0905,