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Jun 25, 2018
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
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Jun 20, 2018
Dave Lukas describes his transformation into an advocate for those with FSHD and participation in clinical trials.
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Jun 18, 2018
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
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Jun 15, 2018
Grant recipient Premi Haynes discusses her work and interest in FSHD.
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Jun 15, 2018
World FSHD Awareness Day.
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Jun 1, 2018
Genea Biocells announced that it has been granted Orphan Drug Designation by the U.S. Food and Drug Administration (FDA) for its therapeutic candidate, GBC0905,