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Apr 29, 2016
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
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Apr 20, 2016
Put a phone reminder and mark your calendars for the Seattle GiveBIG where every donation is stretched further by matching dollars.
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Apr 15, 2016
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
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Apr 8, 2016
aTyr pharma has encouraging news regarding a possible treatment for FSHD using a novel protein-based biologic drug.