Apr 29, 2016
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
Apr 20, 2016
Put a phone reminder and mark your calendars for the Seattle GiveBIG where every donation is stretched further by matching dollars.
Apr 15, 2016
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
Apr 8, 2016
aTyr pharma has encouraging news regarding a possible treatment for FSHD using a novel protein-based biologic drug.