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CTRN Quarterly Newsletter
Aug 23, 2022
FSHD Clinical Trial Research Network Quarterly Newsletter - Summer 2022
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Seat Elevation Systems as an Accessory to Power Wheelchairs (Group 3)
Aug 23, 2022
CMS has accepted a formal request to consider both the benefit category and coverage for seat elevation systems and standing systems.
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Update: Tongue electro-impedance myography: a window into FSHD
Aug 4, 2022
Dr. Sanchez provides a final update on his novel tongue EIM assessment device.
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Update: Generation of a craniofacial muscle model of FSHD
Aug 4, 2022
Final udpate from Dr Guo on the generation of a craniofacial muscle model of FSHD from iPSCs.
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Update: Determining in vitro and in vivo efficacy of novel DUX4 inhibitors
Aug 4, 2022
Dr. Ozes provides a brief update on progress in testing quite novel DUX4 inhibitors.
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Update: Motor Outcomes to Validate Evaluations in FSHD
Aug 4, 2022
Update on MOVE FSHD study.