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Participate in FSHD Research
Apr 20, 2015
Researchers at the University of Washington and Seattle Children's Hospital are seeking volunteers for a study on FSHD.
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Friends of FSH Research approves new strategic initiative
Apr 10, 2015
The board of Friends of FSH Research has approved a new strategic initiative to advance our research efforts.
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Research Update: Dr. Daniel Miller searches the blood for signs of FSHD
Mar 28, 2015
At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data on biomarkers in blood (serum) of people with FSHD
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FSHD research progress highlighted at the Muscular Dystrophy Association Scientific Conference
Mar 17, 2015
FSHD was a hot topic at the MDA scientific conference in Washington D.C.
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Pi Day Donor Match!!!
Mar 13, 2015
In honor of 3/14/15, we have a donor match!
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MDA Scientific Conference
Feb 21, 2015
We will be attending the MDA scientific conference. Meet us in DC!
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Cruising for a Cure
Feb 19, 2015
Our friends in Vancouver are throwing an amazing fundraiser to raise money for research.
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DUX4: No Nonsense
Feb 6, 2015
It's tough to put our finger on exactly why it's bad to have DUX4 around. A new paper sheds light.
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Progress =Update: Tapscott Lab
Feb 4, 2015
The Tapscott lab is entering the final year of a four-year grant. Let's see how they are doing.
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Progress Update: Identification of Serum Biomarkers for Measurement of FSHD Progression
Feb 3, 2015
Progress update from Drs. Miller and Tawil.
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Oh what a night!!!
Jan 26, 2015
Friends of FSH Research raises a record $270,000 at annual auction and gala.
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Research Outlook 2015
Jan 20, 2015
Looking back on the research trends of 2014 helps us focus for the coming year.
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Research Funding: Dr. Maura Parker will improve cellular and animal models of FSHD
Jan 12, 2015
Dr. Parker has had her funding renewed based on approval of a progress report and submission of a new grant for the project's next steps that broadens the scope of impact of her work.
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Research Funding: Drs. Aihara and Kyba want to know their enemy
Jan 11, 2015
Drs. Aihara and Kyba lay out a plan towards solving the crystal structure of DUX4.
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Research Funding: Dr. Eric Wagner aims to stop DUX4 from being made
Jan 7, 2015
Dr. Wagner and a graduate student, Natoya Peart, have an innovative approach to reduce DUX4 levels.
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Friends Featured in Kirkland Living Magazine
Dec 28, 2014
Friends of FSH Research will be featured in the upcoming issue of Kirkland Living Magazine.
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FSHD advocate and para-athlete visits “Good Morning America”
Dec 23, 2014
Carlos Romero paid a visit to the folks at Good Morning America on Tuesday Morning.
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Understanding FSHD2
Dec 19, 2014
Just in case FSH muscular dystrophy (FSHD) wasn’t confusing enough, now there’s a lot of talk about FSHD2. Let’s take some time to make sure we’re all on the same page and understand what’s going on.
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The Roaring 20s 11th Annual Gala and Auction
Dec 10, 2014
The event of the year is fast approaching! Get your tickets today.
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FSHD Research Progress Workshop
Dec 10, 2014
The Friday afternoon before our annual auction we'll be hosting a research progress workshop for researchers, patients, and donors. All are welcome. Please RSVP.