Feb 1, 2020
Slideshow on aberrant translation which was presented at the Wellstone Research Update 2020 by Sujatha Jagannathan PhD.
Jan 31, 2020
Slideshow on epigenetics which was presented at the Wellstone Research Update 2020 by Peter Jones PhD.
Jan 30, 2020
Fulcrum Therapeutics announced that the FDA has granted Orphan Drug Designation to losmapimod, a selective p38α/β mitogen activated protein kinase (MAPK) inhibitor.
Jan 28, 2020
Rashnonajad provides the initial progress update showing efficiently reduced DUX4 mRNA and consequently DUX4 protein in FSHD cells.
Jan 9, 2020
The Friends of FSH Research is partnering with the FSHD Society on a landmark Voice of the Patient Forum for Drug Development.
Dec 15, 2019
Researchers at the University of Washington and Seattle Children’s Hospital are seeking volunteers for a study on FSHD.
Dec 9, 2019
Sachiko Homma provides the final update on DUX4's apparent affect on muscle degradation.
Nov 25, 2019
Wellstone FSHD Fellowship recipient Danielle Hamm provides an update on the first six months of progress.
Nov 24, 2019
The funding provided by Friends of FSH Research and the Carrino Foundation has supported Dr. Amy Campbell, a dedicated professional highly skilled in FSHD research who oversees the completion of high-impact studies on FSHD and provides scientific and technical oversight for graduate students, postdoctoral fellows, and collaborators seeking to initiate and/or advance projects in FSHD.
Nov 17, 2019
Join us at the Annual Auction. Good food, good company, good time.
Nov 6, 2019
Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD (ReSolve FSHD).
Nov 5, 2019
A discussion on recent research advances at the Hyatt prior to the Annual Auction: Rainier Room @ 1-4pm. RSVP. Agenda posted here as well.
Nov 4, 2019
Dr. Pakula provides her final update on this research project.
Nov 4, 2019
Wine tasting and hors d'oeuvres at Elevation Winery in Woodinville.RSVP today via evite or email.
Nov 3, 2019
Enjoy sips, sweets and making your own custom jewelry at the Color Bar. 20% of sales benefit FSHD research.
Oct 24, 2019
Yosuke Hiramuki provides an update on his novel mouse model.
Oct 24, 2019
Darina Šikrová provides a progress update of her work on using a novel genome editing tool to target DUX4.
Sep 29, 2019
Final progress update.
Aug 19, 2019
Fulcrum Therapeutics Announces Initiation of ReDUX4, a Phase 2b Clinical Trial of Losmapimod for FSHD.
Progress Update: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment
Aug 5, 2019
Dr. Tawil provides an update on year three of his project to get genetic testing performed for those in the registry who do not have it, and thus create a larger viable pool for upcoming clinical trials.