Jul 23, 2020
Grant to support the Jones lab in validating a proposed FSHD diagnostic.
Jul 16, 2020
Dr. Jones explains his lab's work on a low-cost FSHD diagnostic.
Jun 24, 2020
Do you miss seeing your favorite artists this summer?
Jun 12, 2020
Dr. Hamm provides a final update to her Wellstone Fellowship project.
Jun 11, 2020
Dr. Tawil provides an update on extended genetic testing for current and new patients in the National Registry.
Jun 3, 2020
In celebration of World FSHD Day and in support of the upcoming Voice of the Patient Forum, Molly White of Dyne Therapeutics invites anyone living with FSHD to describe what would be a meaningful benefit from a successful therapy.
May 20, 2020
Dr. Tapscott provides an update on his multi-year grant.
May 20, 2020
Dr. Marusak provides an update on progress so far.
May 19, 2020
Dyne to evaluate therapies targeting genetic cause of FSHD under agreement with international research organization University of Mons
May 13, 2020
Fulcrum amends their Phase 2b trial, ReDUX4, to extend the trial from 24 to 48 weeks, adds an interim analysis for subjects who underwent their 16-week biopsy as originally planned, and adds a 36-week biopsy for patients who cannot undergo their 16-week biopsy.
Apr 26, 2020
Those living with FSHD know firsthand what it's like to see the world through a changing lens. Recently, Chris Carrino shared some words of encouragement on the Brooklyn Nets website and social media outlets.
Apr 17, 2020
Darina Šikrová provides a progress update of her work on using a novel genome editing tool to target DUX4.
Apr 2, 2020
As a result of the suspension of clinical-trial activity by a number of the Company’s clinical trial sites stemming from the pandemic, the Company is currently assessing the impact to the ReDUX4 clinical trial.
Mar 26, 2020
GiveBIG for Seattle. Friends of FSH Research is suggesting you donate to other non-profits for GiveBIG this year.
Mar 10, 2020
Latest progress from Yosuke Hiramuki.
Feb 3, 2020
Dr. Kyba provides a brief update on our help with recruiting study participants.
Feb 1, 2020
Slideshow on molecular mechanisms of DUX4 which was presented at the Wellstone Research Update 2020 by Danielle Hamm PhD.
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