Posted by Friends of FSH Research on Sep 25, 2020
Department of Neurology
Departments of Rehabilitation Medicine
Participants with FSHD needed
for a study on facial strength
This study will help researchers better understand the progression of facial weakness that occurs in FSHD. Identifying facial weakness as a biomarker for disease progression can hasten clinical trials.
Your participation will require testing of your oral muscles and completion of several questionnaires (30 minutes total).* Testing can occur concurrently with other studies at the UW, or can occur in-home with Covid-19 precautions if in the greater Seattle area. This study requires repeat testing over 2 years.
If you have a confirmed diagnosis of FSHD and are >18 years old you are eligible for this study.
Please contact Laura Johnstone at firstname.lastname@example.org or 206-949-0580 for information and to participate.
*You may already be participating in a study for FSHD at the University of Washington, and this would be one set of additional tests