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Research Publication: Catching DUX4 red (or green)-handed
Sep 2, 2015
Researchers at the University of Washington follow DUX4 - the real DUX4 - that's cool.
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Research Publication: A glimpse into SMCHD1 function
Aug 12, 2015
Researchers in Australia have carried out some important experiments towards our understanding of the FSHD2-causing gene, SMCHD1.
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Research funding: a collaborative effort to silence DUX4
Jul 11, 2015
An industry/academic collaboration to test a lead compound in a potentially robust animal model of FSHD.
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The state of FSH research: update for Toronto patients and families
Jul 11, 2015
An informal group discussion will be held in Toronto.
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Carving a path to cure FSH Muscular Dystrophy: from molecular mechanisms to patients
Jul 11, 2015
Dr. Block will be leading a discussion about FSH Research at the University of Toronto.
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Western Washington FSH community meeting
Jul 11, 2015
The next Western Washington FSH Community meeting is July 25.
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Silencing DUX4 at the source
Jun 27, 2015
A new study suggests it may be possible to re-silence the DUX4-containing DNA array.
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Friends honored at University of Washington Dean's Circle
May 26, 2015
Friends of FSH Research was given honorable mention at the University of Washington Dean's Circle this evening.
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#standup4fshd
May 14, 2015
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“Kill the Keg” at Rock Bottom Brewery for FSH Research!
May 8, 2015
Friends of FSH Research and the Rock Bottom Brewery are teaming up for FSH research!
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Research Funding: Genea Biocells to develop next generation screening platform for FSHD
May 4, 2015
Genea Biocells will develop a validated tool for the FSHD community - and we'll test important hypotheses along the way!
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Research Funding: Dr. Bloch wants to get to the root of FSHD
May 3, 2015
Friends of FSH Research and FSHD Canada fund investigators at the University of Maryland.
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Participate in FSHD Research
Apr 20, 2015
Researchers at the University of Washington and Seattle Children's Hospital are seeking volunteers for a study on FSHD.
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Friends of FSH Research approves new strategic initiative
Apr 10, 2015
The board of Friends of FSH Research has approved a new strategic initiative to advance our research efforts.
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Research Update: Dr. Daniel Miller searches the blood for signs of FSHD
Mar 28, 2015
At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data on biomarkers in blood (serum) of people with FSHD
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FSHD research progress highlighted at the Muscular Dystrophy Association Scientific Conference
Mar 17, 2015
FSHD was a hot topic at the MDA scientific conference in Washington D.C.
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Pi Day Donor Match!!!
Mar 13, 2015
In honor of 3/14/15, we have a donor match!
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MDA Scientific Conference
Feb 21, 2015
We will be attending the MDA scientific conference. Meet us in DC!
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Cruising for a Cure
Feb 19, 2015
Our friends in Vancouver are throwing an amazing fundraiser to raise money for research.
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DUX4: No Nonsense
Feb 6, 2015
It's tough to put our finger on exactly why it's bad to have DUX4 around. A new paper sheds light.