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Jun 17, 2016
Sheila had the pleasure of meeting with Daniel G. Miller, Geneticist at Seattle Children’s Hospital, and Associate Professor at the University of Washington. Dr. Miller and colleagues from the University of Rochester, the University of Washington, and Seattle Children’s Hospital recently published a cross sectional study of two independent groups of people with FSHD, and identified serum biomarkers. The landmark study was published in the journal Neuromuscular Disorders.
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Jun 16, 2016
We are re-issuing our 2016 general call for research proposals. We are accepting any proposal that support a path toward a treatment or cure for FSH muscular dystrophy.
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May 24, 2016
Over $13K for research.
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May 23, 2016
Report of FSHD Summit held in Portland, Oregon, February 29 to March 1 of 2016.
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May 16, 2016
The first ever World FSHD Awareness Day.
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May 14, 2016
What should we use to track the benefits of a treatment in clinical trials for FSHD?
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Apr 29, 2016
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
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Apr 20, 2016
Put a phone reminder and mark your calendars for the Seattle GiveBIG where every donation is stretched further by matching dollars.
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Apr 15, 2016
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
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Apr 8, 2016
aTyr pharma has encouraging news regarding a possible treatment for FSHD using a novel protein-based biologic drug.
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Mar 24, 2016
Dr. Robert Bloch provides an update on his research into xenografting.
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Feb 23, 2016
FSHD clinical research project needs patients to complete study
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Feb 15, 2016
Grant for curriculum development and online resources for education by Robert Kao
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Feb 6, 2016
Upcoming meeting to move research in the direction of treatments.
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Feb 1, 2016
Treat yourself and your garden friends to a day of garden delights at the lovely Lynnwood Convention Center.
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Jan 17, 2016
A discussion of the current research projects and informal discussion with Friends of FSH Research
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Nov 4, 2015
Dr. Chamberlain will be investigating the how DUX4 expression in humans relates to disease pathology.
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Oct 21, 2015
Our 12th annual FiSHing for a Cure Auction and Gala will have the theme of "A Night in Havana". Don't forget your passports!
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Oct 3, 2015
Dr. Block will present a short talk entitled "Global Initiatives to Accelerate FSH Research" to introduce a panel discussion with the FSHD Champions
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Sep 2, 2015
Researchers at the University of Washington follow DUX4 - the real DUX4 - that's cool.