Dec 22, 2016
Updates and round-table discussion on FSHD on the morning of the January Auction.
Dec 19, 2016
UW Medicine geneticist and professor, Dr. Thomas Bird, demonstrates how genetic testing is utilized in the practice of neurology, including practical clinical examples.
Nov 28, 2016
SAB member Bruce Wentworth provides a brief update from the FSH Society Patient Connect Conference.
Nov 14, 2016
Final update for grant to Genea Biocells.
Nov 7, 2016
FSHD funding overview compiled by Wouter Suurmond of Facio Therapies BV.
Oct 28, 2016
The first application for this technology is FSHD disease modelling and drug discovery.
Oct 27, 2016
Webcast to be held Oct 28, 2016 at 10:00 a.m. EDT with Dr. Statland. Archive available on website.
Oct 26, 2016
A proposal to study the histopathological features of muscle in a large biobank from FSHD patients and their first degree family members.
Oct 25, 2016
Development of an in vitro model of FSHD innate immunity.
Oct 6, 2016
aTyr Pharma, a company engaged in the discovery and development of therapeutics to address severe rare diseases, is currently conducting two trials of Resolaris (ATYR1940) in patients with rare myopathies with an immune component.
Aug 26, 2016
258 members of the URMC Registry completed a survey last year. Results indicate that 79% of FSHD patients and 68% of DM patients experience pain.
Aug 20, 2016
Small but critical grant awarded two key stakeholders in the push for FSHD trial readiness.
Jul 18, 2016
Your hashtags earn money for Friends of FSH Research organization
Jul 14, 2016
Implications for FSHD and therapeutic developments
Jul 6, 2016
NCATS Leading Crucial, Collaborate Efforts to Advance Rare Diseases Research.
Jun 20, 2016
Seattle Mayor Ed Murray and US Senator Maria Cantwell pay tribute to the first ever World FSHD Awareness Day.
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