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Medical Equipment, Access Solutions and Respiratory Therapy
Feb 28, 2017
Howard Chabner updates 2013 memo on recommendations for various types of medical and mobility equipment.
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Research Opportunity
Feb 9, 2017
The University of Washington is seeking individuals to participate in a research study aimed at identifying biomarkers of FSHD.
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Meet Our Development Director
Feb 8, 2017
Bonnie DeCaro-Monahan joins Friends of FSH Research.
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AccessMap Routing Tool
Feb 8, 2017
A tool under development at the UW to provide routing information for someone with limited mobility.
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Progress Update: Xenotransplanation of Human Muscle
Jan 31, 2017
Update from Dr. Maura Parker on optimizing expansion of human muscle stem cells for transplant into mice.
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February RFP
Jan 26, 2017
Latest RFP is now open.
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Progress Update: RNA-mediaed Epigenetic Silencing of D4Z4 repeats
Dec 31, 2016
Update by Jong Won Lim, postdoctoral fellow.
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FSHD Respiratory Issues
Dec 26, 2016
Interview with Dr. Nicholas S. Hill, Chief of the Pulmonary, Critical Care, and Sleep Division at Tufts University School of Medicine.
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FSHD Patient Education Day
Dec 22, 2016
Updates and round-table discussion on FSHD on the morning of the January Auction.
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aTyr Pharma Reports Promising Signals with Resolaris
Dec 20, 2016
Press release from aTyr.
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Neurogenetic Testing: The Good, the Bad and the Ugly
Dec 19, 2016
UW Medicine geneticist and professor, Dr. Thomas Bird, demonstrates how genetic testing is utilized in the practice of neurology, including practical clinical examples.
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ENMC Workshop on FSHD Global Registries
Dec 1, 2016
Lay summary for the ENMC Workshop.
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FSHD Animal Model Progress
Nov 28, 2016
SAB member Bruce Wentworth provides a brief update from the FSH Society Patient Connect Conference.
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FSHD Registry
Nov 21, 2016
Dr. Rabi Tawil discusses the National Registry based in Rochester, NY.
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Progress Update: DUX4 activity in hESC-derived muscle
Nov 14, 2016
Final update for grant to Genea Biocells.
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FSHD Research Funding Overview 2015
Nov 7, 2016
FSHD funding overview compiled by Wouter Suurmond of Facio Therapies BV.
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IncuCyte brings live cell imaging to Genea Biocells
Oct 28, 2016
The first application for this technology is FSHD disease modelling and drug discovery.
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Acceleron to Webcast Overview of ACE-083 Phase 2 Trial
Oct 27, 2016
Webcast to be held Oct 28, 2016 at 10:00 a.m. EDT with Dr. Statland. Archive available on website.
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Grant Awarded to Develop Outcome Measure
Oct 26, 2016
A proposal to study the histopathological features of muscle in a large biobank from FSHD patients and their first degree family members.
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Grant Awarded to Explore Innate Immunity
Oct 25, 2016
Development of an in vitro model of FSHD innate immunity.