Apr 10, 2018
Text of Lukas Kostka speech given at January Auction.
Mar 19, 2018
ENMC 25th anniversary summit - The Patient Role in Shared Decision Making.
Feb 7, 2018
Spring 2018 Request for Research Proposals.
Feb 1, 2018
Slide decks for Dr. Tapscott & Dr. Wang from the 27-Jan presentations.
Pre-clinical Safety and Off-Target Studies to Support Translation of AAV-Mediated RNAi Therapy for FSHD
Jan 17, 2018
A publication from Scott Harper's lab reporting on the use of an AAV vector to test the safety of two miRNAs in silencing DUX4.
Jan 4, 2018
Annual Auction for FSHD. NEW RENTON LOCATION.
Jan 1, 2018
Yi-Wen Chen DMV PhD provides an update on investigating 3rd generation oligonucleotides.
Dec 31, 2017
Initial progress update provided by Premi Haynes PhD.
Dec 16, 2017
Follow-on publication for previously funded grant.
Dec 15, 2017
Jocelyn Eidahl, Post-Doctoral Scientist at Nationwide Children’s Hospital provides a progress update.
Dec 14, 2017
Final progress update from Dr. Wagner.
Nov 28, 2017
A discussion on recent research advances at the Hyatt prior to the Annual Auction.
Nov 27, 2017
Have your Giving Tuesday donations matched through facebook and The Gates Foundation.
Nov 21, 2017
Reporting on worldwide funding of FSHD research.
Nov 20, 2017
Chronic Pain Has a Strong Impact on Quality of Life in FSHD.
Nov 15, 2017
Dr. Bloch provides a brief update of his progress on a xenograft mouse model.
Nov 10, 2017
Pre-Auction Table Captain/Sponsor Raffle
Nov 8, 2017
Scott Q. Harper, PhD presents emerging molecular therapies for FSHD at FSHD Global event.
Oct 26, 2017
Scott Q Harper, PhD reviews work at his lab at Nationwide Children's Hospital.
Oct 26, 2017
Leo H Wang, MD PhD provides a layman's description of the clinical features and molecular biology of FSHD.