Sep 19, 2023, 12:25 PM
We have developed a computational cellular model of FSHD, based on a mechanism where expression of DUX4 (currently the main target for FSHD therapy) leads to muscle cell death.
Mar 23, 2022, 6:30 PM
Video of 2022 Research Update Meeting.
Feb 7, 2022, 1:05 PM
Annual research update meeting information.
Nov 5, 2019, 3:02 PM
A discussion on recent research advances at the Hyatt prior to the Annual Auction: Rainier Room @ 1-4pm. RSVP. Agenda posted here as well.
Jan 10, 2019, 5:55 PM
And update on FSHD research from the Wellstone Center on the afternoon before the Annual Auction at the Hyatt Regency.
Jul 17, 2018, 5:51 PM
Jocelyn Eidahl, Post-Doctoral Scientist at Nationwide Children’s Hospital provides a progress update.
Jul 10, 2018, 7:42 PM
Michael Kyba's lab shows that functional skeletal muscle stem cells can be produced from mouse pluripotent stem cells without genetic modification through teratoma formation. As few as 40,000 teratoma-derived cells can regenerate 80% of total muscle volume, improve force generation, and mature into functional muscle stem cells in vivo.
Jun 18, 2018, 9:59 AM
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
Feb 1, 2018, 9:51 PM
Slide decks for Dr. Tapscott & Dr. Wang from the 27-Jan presentations.
Nov 28, 2017, 8:32 PM
A discussion on recent research advances at the Hyatt prior to the Annual Auction.
Dec 22, 2016, 12:28 PM
Updates and round-table discussion on FSHD on the morning of the January Auction.
Jul 14, 2016, 6:20 PM
Implications for FSHD and therapeutic developments
May 23, 2016, 4:44 PM
Report of FSHD Summit held in Portland, Oregon, February 29 to March 1 of 2016.
Apr 15, 2016, 2:53 PM
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
Mar 24, 2016, 3:27 PM
Dr. Robert Bloch provides an update on his research into xenografting.
Feb 6, 2016, 2:15 PM
Upcoming meeting to move research in the direction of treatments.
Jan 17, 2016, 1:50 PM
A discussion of the current research projects and informal discussion with Friends of FSH Research
Jun 27, 2015, 5:05 PM
A new study suggests it may be possible to re-silence the DUX4-containing DNA array.
Apr 10, 2015, 3:21 PM
The board of Friends of FSH Research has approved a new strategic initiative to advance our research efforts.
Mar 28, 2015, 3:08 PM
At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data on biomarkers in blood (serum) of people with FSHD
Feb 6, 2015, 2:19 PM
It's tough to put our finger on exactly why it's bad to have DUX4 around. A new paper sheds light.
Sep 2, 2014, 8:40 AM
An in-depth analysis of the latest publication on a mouse model for FSHD. What does it mean? Why do we need a mouse model?