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Progress Update: Improved, accessible, and affordable FSHD diagnostics
May 18, 2021
Dr. Jones provides a final update on the funding provided for low-cost test diagnostic.
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Progress Update: CTRN International Sites
May 7, 2021
Dr. Tawil provides a final progress update.
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Dr. Chamberlain Elected to VP of the ASGCT
May 3, 2021
The American Society of Gene & Cell Therapy announces results of its vote on open positions on the Board of Directors, naming Dr. Chamberlain VP.
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Progress Update: DUX4 mRNA silencing using CRISPR-Cas13
Apr 20, 2021
Dr. Afrooz Rashnonejad provides a final update on her project.
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Progress Update: Molecular Mechanism of p38 Kinase-mediated inhibition of DUX4 Gene in FSHD
Apr 20, 2021
Dr. Rajanikanth Vangipurapu provides an update on the first year of progress.
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Washington Gives 2021
Apr 19, 2021
Give BIG 2021
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Progress Update: DUX4 mRNA silencing using RNA editing
Apr 18, 2021
Dr. Harper provides an update on his project.
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Progress Update: Base editing of DUX4 somatic polyadenylation signal
Apr 18, 2021
Darina Šikrová provides a final update on her project.
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Progress Update: Development of a Novel Tool to Measure Orofacial Strength in FSDH
Apr 17, 2021
Progress update from Dr. Johnstone regarding termination of the project.
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Progress Update: Flex fund for clinical study participant reimbursement
Mar 16, 2021
Dr. Kyba provides an update on his clinical study reimbursement expenses.
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Progress Update: DUX4-induced mechanisms contributing to FSHD pathogenesis
Mar 16, 2021
Dr. Hamm provides an update on the molecular mechanisms that occur in FSHD.
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Progress Update: Deciphering the role of aberrant protein synthesis in FSHD
Mar 6, 2021
Dr Jagannathan provides an update on her lab's research.
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Progress Update: Motor Outcomes to Validate Evaluations in FSHD
Mar 6, 2021
Dr. Statland provides an update to the MOVE FSHD study.
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2021 FSHD Research Update Meeting
Mar 2, 2021
Friends of FSH Research hosted our annual FSHD Research Update Meeting on Saturday February 27, 2021. Recording now available.
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2021 FSHD Research Update Meeting
Feb 23, 2021
Friends of FSH Research is excited to host our annual FSHD Research Update Meeting. Logo T-Shirt now available.
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Progress Update: Development of novel DUX4-targeted miR-675-based therapies for FSHD
Feb 1, 2021
Dr. Saad provides a 6-month update on his work.
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Progress Update: Antisense Oligonucleotide – Antibody Conjugates to Treat FSHD
Dec 1, 2020
Dr. Marusak provides a one-year update on their progress.
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Progress Update: Regulation and activity of the DUX4 transcription factor
Nov 21, 2020
Dr. Tapscott and provides an update on his multi-year grant.
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Voice of the Patient Report
Nov 15, 2020
In June 2020 Friends of FSH Research partnered with the FSHD Society in an externally led patient-focused drug development meeting. The report is now available.
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Progress Update: Base editing of DUX4 somatic polyadenylation signal
Nov 15, 2020
Dr. Šikrová provides an update on grant progress.