Dec 1, 2020
Dr. Marusak provides a one-year update on their progress.
Nov 21, 2020
Dr. Tapscott and provides an update on his multi-year grant.
Nov 15, 2020
In June 2020 Friends of FSH Research partnered with the FSHD Society in an externally led patient-focused drug development meeting. The report is now available.
Nov 15, 2020
Dr. Šikrová provides an update on grant progress.
Nov 9, 2020
We are living in some pretty challenging times right now. COVID has made everyone rethink everything we do including the things we take for granted every day.
Oct 25, 2020
Dr. Rashnonejad provides an update on a potential therapeutic.
Oct 14, 2020
Dr. Bloch provides an update on progress investigating a potential biomarker for FSHD.
Oct 14, 2020
Dr. Wang provides an update on the various studies supported by Friends at the UW.
Oct 6, 2020
Dr. Lek provides an update on progress establishing a pipeline for testing the therapeutic potential of the drugs to reduce DUX4 toxicity, starting with everolimus.
Sep 26, 2020
Researchers at the University of Washington are investigating new instruments to measure the strength of the oral muscles in FSHD.
Sep 25, 2020
Researchers at the University of Washington are investigating new instruments to measure the strength of the oral muscles in FSHD.
Sep 24, 2020
Board member Dr. Premi Haynes interviews grant recipient Dr. Sujatha Jagannathan.
Sep 15, 2020
Dr. Peter Jones provides a 6 month update on validating an affordable epigenetic diagnostic. The validation could be helped by more volunteers.
Sep 14, 2020
Dr. Rabi Tawil provides an update on the expansion of the ReSolve Study to include two European Sites.
Sep 10, 2020
Dr. Vangipurapu from the Sverdrup Lab provides a progress update.
Aug 6, 2020
Dr. Jagannathan provides an update on her lab's progress so far on aberrant RNA.
Jul 23, 2020
A grant to Drs. Statland and Tawil in support of a multi-year study.
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