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Progress Update: SLC34A2 as a Biomarker for FSHD
Oct 14, 2020
Dr. Bloch provides an update on progress investigating a potential biomarker for FSHD.
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Progress Update: Clinical Trial Support at University of Washington
Oct 14, 2020
Dr. Wang provides an update on the various studies supported by Friends at the UW.
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Progress Update: Screening of FDA-approved compounds
Oct 6, 2020
Dr. Lek provides an update on progress establishing a pipeline for testing the therapeutic potential of the drugs to reduce DUX4 toxicity, starting with everolimus.
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Mask-r-Aid Ball: The Big Draw
Sep 28, 2020
Win a special UW mask at the Mask-r-Aid Ball.
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FSHD Orofacial Study Summary
Sep 26, 2020
Researchers at the University of Washington are investigating new instruments to measure the strength of the oral muscles in FSHD.
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Participants with FSHD needed for a study on facial strength
Sep 25, 2020
Researchers at the University of Washington are investigating new instruments to measure the strength of the oral muscles in FSHD.
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Ask the Expert: Nonsense Mediated Decay
Sep 24, 2020
Board member Dr. Premi Haynes interviews grant recipient Dr. Sujatha Jagannathan.
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Progress Update: Improved, accessible, and affordable FSHD diagnostics
Sep 15, 2020
Dr. Peter Jones provides a 6 month update on validating an affordable epigenetic diagnostic. The validation could be helped by more volunteers.
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Progress Update: CTRN International Sites
Sep 14, 2020
Dr. Rabi Tawil provides an update on the expansion of the ReSolve Study to include two European Sites.
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Progress Update: Molecular Mechanism of p38 Kinase-mediated inhibition of DUX4
Sep 10, 2020
Dr. Vangipurapu from the Sverdrup Lab provides a progress update.
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Michelle Li with KING5
Aug 8, 2020
Michelle Li of KING5 on Mask-r-Aid Ball.
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Progress Update: Deciphering the role of aberrant protein synthesis in FSHD
Aug 6, 2020
Dr. Jagannathan provides an update on her lab's progress so far on aberrant RNA.
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Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
Jul 23, 2020
A grant to Drs. Statland and Tawil in support of a multi-year study.
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Improved, accessible, and affordable FSHD diagnostic
Jul 23, 2020
Grant to support the Jones lab in validating a proposed FSHD diagnostic.
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A Low-Cost FSHD Diagnostic
Jul 16, 2020
Dr. Jones explains his lab's work on a low-cost FSHD diagnostic.
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Wedgwood Art Festival Goes Virtual
Jun 24, 2020
Do you miss seeing your favorite artists this summer?
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World FSHD Day Newsletter
Jun 20, 2020
United for a Cure.
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World FSHD Day
Jun 19, 2020
Dyne has produced a wonderful "Fireside" video for World FSHD Day.
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Progress Update: Analysis of histone demethylases as candidate targets for FSHD therapeutics
Jun 12, 2020
Dr. Hamm provides a final update to her Wellstone Fellowship project.
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Progress Update: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment
Jun 11, 2020
Dr. Tawil provides an update on extended genetic testing for current and new patients in the National Registry.