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Spring Forward to a Cure with Flowers
Feb 25, 2022
Buy spring flowers for your garden and support FSHD research, where 50% of proceeds come directly back to our organization.
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Spring Forward To a Cure - Online Auction
Feb 7, 2022
Our Annual Auction is online this year
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Wedgwood Art Festival
Feb 7, 2022
The Wedgwood Art Festival is back as an in-person, 2-day event, supporting and celebrating arts in the Wedgwood community with a focus on NW artists and craftspeople.
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2022 FSHD Research Update Meeting
Feb 7, 2022
Annual research update meeting information.
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Progress Update: Novel Therapeutics for FSHD: Mitochondria-targeted Antioxidants
Feb 7, 2022
Dr. Heher provides an update on his innovative mitochondria-targeted antioxidants research.
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Progress Update: Motor Outcomes to Validate Evaluations in FSHD
Jan 25, 2022
Dr. Statland provides an 18 month update on the current state of CTRN.
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Progress Update: Testing the effects of antifibrotic drugs on an FSHD mouse model and FSHD fibroadipoprogenitors: the first step toward antifibrotic therapy for FSHD
Dec 8, 2021
Dr. Bosnakovski provides an initial update on his project.
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Progress Update: Tongue electro-impedance myography: a window into FSHD
Nov 22, 2021
Dr. Sanchez provides an update on the initial phase of his clinical trial
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Progress Update: DUX4 mRNA silencing using RNA editing
Nov 20, 2021
Dr. Harper provides a final update on grant progress.
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Progress Update: Antisense Oligonucleotide – Antibody Conjugates to Treat FSHD
Nov 20, 2021
Dr. Marusak provides an interim update on grant progress.
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Progress Update: SLC34A2 as a Biomarker for FSHD
Nov 13, 2021
Dr. Bloch provides a final report on progress.
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Progress Update: Development of novel DUX4-targeted miR-675-based therapies for FSHD
Oct 14, 2021
Dr. Saad provides a final update on his grant progress.
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Progress Update: The discovery of a novel small molecule inhibitor for DUX4
Sep 24, 2021
Dr. Ozes provides an update to his successful work in finding a potential small molecule inhibitor for DUX4.
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Progress Update: Molecular Mechanism of p38 Kinase-mediated inhibition of DUX4
Sep 11, 2021
Dr. Vangipurapu provides an update on his research.
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Progress Update: Deciphering the role of aberrant protein synthesis in FSHD
Aug 9, 2021
Dr. Jagannathan provides an update on research progress.
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Progress Update: Motor Outcomes to Validate Evaluations in FSHD
Jul 15, 2021
Dr. Statland provides a second update on the MOVE FSHD Study.
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Dyne Therapeutics - World FSHD Day Panel Discussion
Jun 19, 2021
Panel discussion video with various stakeholders lead by Dyne Therapeutics.
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Clinical trial network aims to speeding up development of effective treatments for rare type of muscular dystrophy
Jun 18, 2021
Article published by University of Kansas Medical Center provides insight into work by Dr. Jeffrey Statland, partially supported through multiple grants from Friends of FSH Research.
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World FSHD Day 2021
Jun 18, 2021
World FSHD Awareness Day 202, featuring the Jones Lab free FSHD test diagnostic.
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Progress Update: Screening of FDA-approved compounds
Jun 10, 2021
Dr. Lek provides a final update to her screening grant.