#
Ride Kick-Off Celebration
May 1, 2017
Meet all the cyclists to cheer them on as they depart for their long journey.
#
Coast 2 Coast Pre-Ride Meet & Greet
May 1, 2017
Meet Chris Carrino, Frank Carbone, and his team of cyclists at Postdoc Brewing.
#
World FSHD Day Awards Reception
May 1, 2017
Join us as we recognize the researchers and their teams.
#
Chris Carrino
May 1, 2017
Chris pushes past his time and physical constraints to run a foundation while continuing in his role as announcer for the Brooklyn Nets.
#
Wedgwood Art Festival
May 1, 2017
Visit us and the artists who support our annual auction. Volunteers needed!
#
GiveBIG
May 1, 2017
GiveBIG campaign sponsored by the Seattle Foundation.
#
Therapy Q&A
May 1, 2017
Interview of Dr. Joel Chamberlain regarding her lab's work on therapy development.
#
Kirkland couple raises $3.2M for FSHD
Apr 17, 2017
Kirkland Reporter article.
#
Progress Update: Structural studies of DUX4-DNA interaction
Mar 24, 2017
Hideki Aihara PhD provides an update on his research into the structure of the Dux4 homeodomains in complex with DNA.
#
Where the Funding Goes
Mar 24, 2017
Amanda provides brief visuals on where your funding has gone within the USA and Worldwide.
#
Potential use of BET inhibitors for FSHD
Mar 11, 2017
Q&A by Fran Sverdrup, a Research Fellow at Center for World Health and Medicine.
#
Progress in Understanding FSHD Molecular Pathology
Mar 11, 2017
Review of a newly published paper from Davide Gabellini's group.
#
Medical Equipment, Access Solutions and Respiratory Therapy
Feb 28, 2017
Howard Chabner updates 2013 memo on recommendations for various types of medical and mobility equipment.
#
Research Opportunity
Feb 9, 2017
The University of Washington is seeking individuals to participate in a research study aimed at identifying biomarkers of FSHD.
#
Meet Our Development Director
Feb 8, 2017
Bonnie DeCaro-Monahan joins Friends of FSH Research.
#
AccessMap Routing Tool
Feb 8, 2017
A tool under development at the UW to provide routing information for someone with limited mobility.
#
Progress Update: Xenotransplanation of Human Muscle
Jan 31, 2017
Update from Dr. Maura Parker on optimizing expansion of human muscle stem cells for transplant into mice.
#
February RFP
Jan 26, 2017
Latest RFP is now open.
#
Progress Update: RNA-mediaed Epigenetic Silencing of D4Z4 repeats
Dec 31, 2016
Update by Jong Won Lim, postdoctoral fellow.
#
FSHD Respiratory Issues
Dec 26, 2016
Interview with Dr. Nicholas S. Hill, Chief of the Pulmonary, Critical Care, and Sleep Division at Tufts University School of Medicine.