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Progress Update: Defining the role of PTM on FSHD protein DUX4
Sep 29, 2019
Final progress update.
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Fulcrum Announces Initiation of Phase 2b Clinical Trial of Losmapimod
Aug 19, 2019
Fulcrum Therapeutics Announces Initiation of ReDUX4, a Phase 2b Clinical Trial of Losmapimod for FSHD.
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Progress Update: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment
Aug 5, 2019
Dr. Tawil provides an update on year three of his project to get genetic testing performed for those in the registry who do not have it, and thus create a larger viable pool for upcoming clinical trials.
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Progress Update: Young Investigator Travel Grants
Aug 2, 2019
Travel reports from recipients of travel grants for the 2019 FSH Society International Research Congress.
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Progress Update: Aberrant Protein Synthesis
Aug 1, 2019
Sujatha Jagannathan provides a brief final summary of work on her research.
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Progress Update: Omics Approach to Identifying Biomarkers
Aug 1, 2019
Yi-Wen Chen provides a final summary of her research activities.
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Progress Update: CTRN International Sites
Aug 1, 2019
Dr. Tawil provides a brief update on the two CTRN European sites funded.
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Interview With Dr. Danielle Hamm
Jul 26, 2019
Recipient of the FSH Fellowship award.
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CTRN ReSolve FSHD Update
Jul 19, 2019
Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD (ReSolve FSHD).
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DUX4 suppresses MHC Class I
Jul 18, 2019
DUX4 suppresses MHC Class I to promote cancer immune evasion and resistance to checkpoint blockade.
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2019 Request for Research Proposals
Jun 17, 2019
Friends of FSH Research is pleased to announce our next request for grant proposals to help the advancement of FSHD research.
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2019 Wedgwood Art Festival
Jun 10, 2019
Visit us and some of the artists who support our annual auction.
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2019 Pacific NW Walk & Roll
Jun 10, 2019
The 2nd Annual Walk & Roll to Cure FSHD in beautiful Bellevue, WA!
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Progress Update: Xenograft Mouse Model
Jun 5, 2019
Dr. Bloch provides a final update on his xenograft mouse model project.
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World FSHD Day
Jun 4, 2019
World FSHD Awareness Day.
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Progress Update: Regulation and activity of the DUX4 transcription factor
May 29, 2019
The funding provided by Friends of FSH Research and the Carrino Foundation has supported Dr. Amy Campbell, a dedicated professional highly skilled in FSHD research who oversees the completion of high-impact studies on FSHD and provides scientific and technical oversight for graduate students, postdoctoral fellows, and collaborators seeking to initiate and/or advance projects in FSHD.
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Give BIG Final Results
May 15, 2019
Through your generosity, and with matching funds, we raised $20K to help fund Evaluators for the FSHD CTRN.
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Fulcrum Acquires Rights to a Potential Disease-Modifying Therapy for FSHD
Apr 23, 2019
Fulcrum Therapeutics today announced an exclusive worldwide license agreement with GlaxoSmithKline for development and commercialization of the investigational drug losmapimod.
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GiveBIG 2019
Apr 17, 2019
All 2019 GiveBIG donations will be earmarked for the training of clinical evaluators for future FSHD drug trials.
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New FSHD CTRN Quarterly Newsletter
Apr 13, 2019
New quarterly publication for the FSHD Clinical Trial Research Network.