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Aug 5, 2019
Dr. Tawil provides an update on year three of his project to get genetic testing performed for those in the registry who do not have it, and thus create a larger viable pool for upcoming clinical trials.
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Aug 2, 2019
Travel reports from recipients of travel grants for the 2019 FSH Society International Research Congress.
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Aug 1, 2019
Sujatha Jagannathan provides a brief final summary of work on her research.
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Aug 1, 2019
Yi-Wen Chen provides a final summary of her research activities.
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Aug 1, 2019
Dr. Tawil provides a brief update on the two CTRN European sites funded.
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Jul 26, 2019
Recipient of the FSH Fellowship award.
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Jul 19, 2019
Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD (ReSolve FSHD).
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Jul 18, 2019
DUX4 suppresses MHC Class I to promote cancer immune evasion and resistance to checkpoint blockade.
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Jun 17, 2019
Friends of FSH Research is pleased to announce our next request for grant proposals to help the advancement of FSHD research.
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Jun 10, 2019
Visit us and some of the artists who support our annual auction.
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Jun 10, 2019
The 2nd Annual Walk & Roll to Cure FSHD in beautiful Bellevue, WA!
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Jun 5, 2019
Dr. Bloch provides a final update on his xenograft mouse model project.
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Jun 4, 2019
World FSHD Awareness Day.
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May 29, 2019
The funding provided by Friends of FSH Research and the Carrino Foundation has supported Dr. Amy Campbell, a dedicated professional highly skilled in FSHD research who oversees the completion of high-impact studies on FSHD and provides scientific and technical oversight for graduate students, postdoctoral fellows, and collaborators seeking to initiate and/or advance projects in FSHD.
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May 15, 2019
Through your generosity, and with matching funds, we raised $20K to help fund Evaluators for the FSHD CTRN.
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Apr 23, 2019
Fulcrum Therapeutics today announced an exclusive worldwide license agreement with GlaxoSmithKline for development and commercialization of the investigational drug losmapimod.
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Apr 17, 2019
All 2019 GiveBIG donations will be earmarked for the training of clinical evaluators for future FSHD drug trials.
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Apr 13, 2019
New quarterly publication for the FSHD Clinical Trial Research Network.
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Apr 13, 2019
Dr. Pakula provides an update on her research.
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Apr 3, 2019
Prof. Dr. Arend Heerschap provides an update on his research to determine in which muscles and where in a muscle DUX4 starts to be harmful.