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CTRN ReSolve FSHD Update
Jul 19, 2019
Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD (ReSolve FSHD).
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DUX4 suppresses MHC Class I
Jul 18, 2019
DUX4 suppresses MHC Class I to promote cancer immune evasion and resistance to checkpoint blockade.
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2019 Request for Research Proposals
Jun 17, 2019
Friends of FSH Research is pleased to announce our next request for grant proposals to help the advancement of FSHD research.
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2019 Wedgwood Art Festival
Jun 10, 2019
Visit us and some of the artists who support our annual auction.
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2019 Pacific NW Walk & Roll
Jun 10, 2019
The 2nd Annual Walk & Roll to Cure FSHD in beautiful Bellevue, WA!
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Progress Update: Xenograft Mouse Model
Jun 5, 2019
Dr. Bloch provides a final update on his xenograft mouse model project.
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World FSHD Day
Jun 4, 2019
World FSHD Awareness Day.
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Progress Update: Regulation and activity of the DUX4 transcription factor
May 29, 2019
The funding provided by Friends of FSH Research and the Carrino Foundation has supported Dr. Amy Campbell, a dedicated professional highly skilled in FSHD research who oversees the completion of high-impact studies on FSHD and provides scientific and technical oversight for graduate students, postdoctoral fellows, and collaborators seeking to initiate and/or advance projects in FSHD.
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Give BIG Final Results
May 15, 2019
Through your generosity, and with matching funds, we raised $20K to help fund Evaluators for the FSHD CTRN.
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Fulcrum Acquires Rights to a Potential Disease-Modifying Therapy for FSHD
Apr 23, 2019
Fulcrum Therapeutics today announced an exclusive worldwide license agreement with GlaxoSmithKline for development and commercialization of the investigational drug losmapimod.
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GiveBIG 2019
Apr 17, 2019
All 2019 GiveBIG donations will be earmarked for the training of clinical evaluators for future FSHD drug trials.
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New FSHD CTRN Quarterly Newsletter
Apr 13, 2019
New quarterly publication for the FSHD Clinical Trial Research Network.
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Progress Update: Understanding the initiation and progression of FSHD-1
Apr 13, 2019
Dr. Pakula provides an update on her research.
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Progress Update: MRI measurement to identify disease initiation in FSHD
Apr 3, 2019
Prof. Dr. Arend Heerschap provides an update on his research to determine in which muscles and where in a muscle DUX4 starts to be harmful.
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New Grant Funding
Apr 2, 2019
$350,000 in new grants recently funded.
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The ReSolve Study Video
Apr 1, 2019
Video by Dr. Leo Wang about the ReSolve Study - Clinical Trial Preparedness to Solve Barriers to Drug Development in FSHD.
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Progress Update: Mechanisms of DUX4-Induced Muscle Atrophy
Feb 27, 2019
Sachiko Homma provides an update on her investigation into DUX4-induced muscle atrophy.
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Progress Update: Exploring mechanisms of myopathology in FSHD
Feb 15, 2019
Dr. Kyba's final update on investigating what exactly is happening to muscles as FSHD progresses.
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The 2019 Auction
Jan 15, 2019
It's the Annual Auction of course! Tickets and special hotel rate still available.
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2019 FSHD Science Briefing
Jan 10, 2019
And update on FSHD research from the Wellstone Center on the afternoon before the Annual Auction at the Hyatt Regency.