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Give BIG Final Results
May 15, 2019
Through your generosity, and with matching funds, we raised $20K to help fund Evaluators for the FSHD CTRN.
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Fulcrum Acquires Rights to a Potential Disease-Modifying Therapy for FSHD
Apr 23, 2019
Fulcrum Therapeutics today announced an exclusive worldwide license agreement with GlaxoSmithKline for development and commercialization of the investigational drug losmapimod.
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GiveBIG 2019
Apr 17, 2019
All 2019 GiveBIG donations will be earmarked for the training of clinical evaluators for future FSHD drug trials.
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New FSHD CTRN Quarterly Newsletter
Apr 13, 2019
New quarterly publication for the FSHD Clinical Trial Research Network.
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Progress Update: Understanding the initiation and progression of FSHD-1
Apr 13, 2019
Dr. Pakula provides an update on her research.
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Progress Update: MRI measurement to identify disease initiation in FSHD
Apr 3, 2019
Prof. Dr. Arend Heerschap provides an update on his research to determine in which muscles and where in a muscle DUX4 starts to be harmful.
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New Grant Funding
Apr 2, 2019
$350,000 in new grants recently funded.
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The ReSolve Study Video
Apr 1, 2019
Video by Dr. Leo Wang about the ReSolve Study - Clinical Trial Preparedness to Solve Barriers to Drug Development in FSHD.
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Progress Update: Mechanisms of DUX4-Induced Muscle Atrophy
Feb 27, 2019
Sachiko Homma provides an update on her investigation into DUX4-induced muscle atrophy.
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Progress Update: Exploring mechanisms of myopathology in FSHD
Feb 15, 2019
Dr. Kyba's final update on investigating what exactly is happening to muscles as FSHD progresses.
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The 2019 Auction
Jan 15, 2019
It's the Annual Auction of course! Tickets and special hotel rate still available.
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2019 FSHD Science Briefing
Jan 10, 2019
And update on FSHD research from the Wellstone Center on the afternoon before the Annual Auction at the Hyatt Regency.
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Flatstick Pub in Kirkland Supports FSHD Every Sunday in January
Dec 30, 2018
Every Sunday for the entire month of January Flatstick Pub in Kirkland will be promoting Friends of FSH Research.
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Progress Update: Defining the role of PTM on FSHD protein DUX4
Dec 27, 2018
Jocelyn Eidahl provides a progress update on the past 6 months of investigating the role of post-translational modification on FSHD protein DUX4.
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Progress Update: Omics Approach to Identifying Biomarkers
Dec 18, 2018
Yi-Wen Chen provides a summary of the first six months of research activities.
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U of M Researchers Allow FSHD Patients to See What DUX4 Protein Looks Like
Dec 17, 2018
Article by the University of Minnesota discussing the results of a projects funded in part by Friends of FSH Research.
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Progress Update: DUX4 Transcription Factor
Dec 3, 2018
Amy Campbell provides a brief update of her work overseeing lab personnel, publications, etc.
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Progress Update: Aberrant Protein Synthesis
Nov 29, 2018
Sujatha Jagannathan provides a brief summary of the first six months of work on her research.
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Progress Update: Single Cell Transcriptomics
Nov 20, 2018
Dr. Pakula provides a progress update on characterizing single DUX4 expressing cells.
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Progress Update: Mechanisms of Myopathology
Nov 16, 2018
Progress update from Dr. Kyba.