Apr 17, 2020
Darina Šikrová provides a progress update of her work on using a novel genome editing tool to target DUX4.
Apr 2, 2020
As a result of the suspension of clinical-trial activity by a number of the Company’s clinical trial sites stemming from the pandemic, the Company is currently assessing the impact to the ReDUX4 clinical trial.
Mar 26, 2020
GiveBIG for Seattle. Friends of FSH Research is suggesting you donate to other non-profits for GiveBIG this year.
Mar 10, 2020
Latest progress from Yosuke Hiramuki.
Feb 3, 2020
Dr. Kyba provides a brief update on our help with recruiting study participants.
Feb 1, 2020
Slideshow on molecular mechanisms of DUX4 which was presented at the Wellstone Research Update 2020 by Danielle Hamm PhD.
Feb 1, 2020
Slideshow on aberrant translation which was presented at the Wellstone Research Update 2020 by Sujatha Jagannathan PhD.
Jan 31, 2020
Slideshow on epigenetics which was presented at the Wellstone Research Update 2020 by Peter Jones PhD.
Jan 30, 2020
Fulcrum Therapeutics announced that the FDA has granted Orphan Drug Designation to losmapimod, a selective p38α/β mitogen activated protein kinase (MAPK) inhibitor.
Jan 28, 2020
Rashnonajad provides the initial progress update showing efficiently reduced DUX4 mRNA and consequently DUX4 protein in FSHD cells.
Jan 9, 2020
The Friends of FSH Research is partnering with the FSHD Society on a landmark Voice of the Patient Forum for Drug Development.
Dec 15, 2019
Researchers at the University of Washington and Seattle Children’s Hospital are seeking volunteers for a study on FSHD.
Dec 9, 2019
Sachiko Homma provides the final update on DUX4's apparent affect on muscle degradation.
Nov 25, 2019
Wellstone FSHD Fellowship recipient Danielle Hamm provides an update on the first six months of progress.
Nov 24, 2019
The funding provided by Friends of FSH Research and the Carrino Foundation has supported Dr. Amy Campbell, a dedicated professional highly skilled in FSHD research who oversees the completion of high-impact studies on FSHD and provides scientific and technical oversight for graduate students, postdoctoral fellows, and collaborators seeking to initiate and/or advance projects in FSHD.
Nov 17, 2019
Join us at the Annual Auction. Good food, good company, good time.
Nov 6, 2019
Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD (ReSolve FSHD).
Nov 5, 2019
A discussion on recent research advances at the Hyatt prior to the Annual Auction: Rainier Room @ 1-4pm. RSVP. Agenda posted here as well.
Nov 4, 2019
Dr. Pakula provides her final update on this research project.
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