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Layman's Description of FSHD
Oct 26, 2017
Leo H Wang, MD PhD provides a layman's description of the clinical features and molecular biology of FSHD.
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Kendra Gives Back Party
Oct 10, 2017
Enjoy sips, sweets and making your own custom jewelry at the Color Bar. 20% of sales benefit FSHD research.
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Tips for Air Travel with a Power Wheelchair
Sep 26, 2017
Howard Chabner addresses issues of air travel with a power wheelchair.
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BETi Compounds Alter DUX4 Expression
Sep 22, 2017
Amy Campbell and Fran Sverdrup have recently published a paper on initial results of a screen for compounds that inhibit DUX4 expression.
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September 2017 RFP
Sep 10, 2017
Our latest RFP is now open.
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George & Lynn
Sep 10, 2017
George & Lynn's commitment to Friends of FSH Research is a natural fit due to their common goal of basic research.
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World FSHD Day Proclamation
Jun 20, 2017
Washington State Governor Jay Inslee proclaims June 20th "FSHD Awareness Day."
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Friends of FSH Research recognizes local researchers
Jun 8, 2017
Since 2004 efforts have been made locally to infuse the Seattle research community with funds for FSHD research.
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Progress Update: Histochemical and morphometric analysis of FSHD biceps
Jun 8, 2017
Update from Dr. Wagner regarding her study of the histopathological features of FSHD affected muscle.
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Progress Update: Clinical Study using MRI to measure immune response
May 30, 2017
Dr. Wang provides a progress update on his clinical study.
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Progress Update: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment
May 30, 2017
Progress update from Dr. Tawil on making the National Registry more useful for research by providing genetic testing.
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Highlights of 2017 MDA Conference
May 18, 2017
Genea Biocells scientists presented work from four disease modeling projects.
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You Gave BIG
May 11, 2017
Thanks to you, we exceeded our Give BIG goal.
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GiveBIG is today!
May 10, 2017
GiveBIG campaign sponsored by the Seattle Foundation.
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Coast 2 Coast 4 FSHD
May 1, 2017
4200 miles in 54 days to raise funds for research.
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Ride Kick-Off Celebration
May 1, 2017
Meet all the cyclists to cheer them on as they depart for their long journey.
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Coast 2 Coast Pre-Ride Meet & Greet
May 1, 2017
Meet Chris Carrino, Frank Carbone, and his team of cyclists at Postdoc Brewing.
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World FSHD Day Awards Reception
May 1, 2017
Join us as we recognize the researchers and their teams.
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Chris Carrino
May 1, 2017
Chris pushes past his time and physical constraints to run a foundation while continuing in his role as announcer for the Brooklyn Nets.
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Wedgwood Art Festival
May 1, 2017
Visit us and the artists who support our annual auction. Volunteers needed!