Dec 18, 2018
Yi-Wen Chen provides a summary of the first six months of research activities.
Dec 17, 2018
Article by the University of Minnesota discussing the results of a projects funded in part by Friends of FSH Research.
Dec 3, 2018
Amy Campbell provides a brief update of her work overseeing lab personnel, publications, etc.
Nov 29, 2018
Sujatha Jagannathan provides a brief summary of the first six months of work on her research.
Nov 20, 2018
Dr. Pakula provides a progress update on characterizing single DUX4 expressing cells.
Nov 14, 2018
Update from Dr. Wang on his clinical study.
Nov 5, 2018
Dr. Tawil provides a brief update on the two CTRN European sites funded.
Aug 31, 2018
Fabiola Bertinotti writes about her week in Vienna as a member of the TREAT-NMD Advisory Committee for Therapeutics (TACT).
Aug 1, 2018
Dr. Tawil discusses his historical relationship with FSHD and the future of potential therapies.
Jul 31, 2018
Charles Emerson provides the final update on his recent study.
Jul 17, 2018
Jocelyn Eidahl, Post-Doctoral Scientist at Nationwide Children’s Hospital provides a progress update.
Jul 11, 2018
Yi-Wen Chen DMV PhD provides an update on investigating 3rd generation oligonucleotides.
Jul 10, 2018
Michael Kyba's lab shows that functional skeletal muscle stem cells can be produced from mouse pluripotent stem cells without genetic modification through teratoma formation. As few as 40,000 teratoma-derived cells can regenerate 80% of total muscle volume, improve force generation, and mature into functional muscle stem cells in vivo.
Jul 5, 2018
Dr. Tawil provides an update on year two of his project to get genetic testing performed for those in the registry who do not have it, and thus create a larger viable pool for upcoming therapeutic trials.
Jun 25, 2018
Fabiola Bertinotti provides an update on Jaya, who spoke at the 2018 Annual Auction.
Jun 20, 2018
Dave Lukas describes his transformation into an advocate for those with FSHD and participation in clinical trials.
Jun 18, 2018
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
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