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GiveBIG
May 1, 2017
GiveBIG campaign sponsored by the Seattle Foundation.
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Therapy Q&A
May 1, 2017
Interview of Dr. Joel Chamberlain regarding her lab's work on therapy development.
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Kirkland couple raises $3.2M for FSHD
Apr 17, 2017
Kirkland Reporter article.
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Progress Update: Structural studies of DUX4-DNA interaction
Mar 24, 2017
Hideki Aihara PhD provides an update on his research into the structure of the Dux4 homeodomains in complex with DNA.
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Where the Funding Goes
Mar 24, 2017
Amanda provides brief visuals on where your funding has gone within the USA and Worldwide.
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Potential use of BET inhibitors for FSHD
Mar 11, 2017
Q&A by Fran Sverdrup, a Research Fellow at Center for World Health and Medicine.
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Progress in Understanding FSHD Molecular Pathology
Mar 11, 2017
Review of a newly published paper from Davide Gabellini's group.
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Medical Equipment, Access Solutions and Respiratory Therapy
Feb 28, 2017
Howard Chabner updates 2013 memo on recommendations for various types of medical and mobility equipment.
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Research Opportunity
Feb 9, 2017
The University of Washington is seeking individuals to participate in a research study aimed at identifying biomarkers of FSHD.
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Meet Our Development Director
Feb 8, 2017
Bonnie DeCaro-Monahan joins Friends of FSH Research.
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AccessMap Routing Tool
Feb 8, 2017
A tool under development at the UW to provide routing information for someone with limited mobility.
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Progress Update: Xenotransplanation of Human Muscle
Jan 31, 2017
Update from Dr. Maura Parker on optimizing expansion of human muscle stem cells for transplant into mice.
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February RFP
Jan 26, 2017
Latest RFP is now open.
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Progress Update: RNA-mediaed Epigenetic Silencing of D4Z4 repeats
Dec 31, 2016
Update by Jong Won Lim, postdoctoral fellow.
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FSHD Respiratory Issues
Dec 26, 2016
Interview with Dr. Nicholas S. Hill, Chief of the Pulmonary, Critical Care, and Sleep Division at Tufts University School of Medicine.
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FSHD Patient Education Day
Dec 22, 2016
Updates and round-table discussion on FSHD on the morning of the January Auction.
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aTyr Pharma Reports Promising Signals with Resolaris
Dec 20, 2016
Press release from aTyr.
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Neurogenetic Testing: The Good, the Bad and the Ugly
Dec 19, 2016
UW Medicine geneticist and professor, Dr. Thomas Bird, demonstrates how genetic testing is utilized in the practice of neurology, including practical clinical examples.
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ENMC Workshop on FSHD Global Registries
Dec 1, 2016
Lay summary for the ENMC Workshop.
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FSHD Animal Model Progress
Nov 28, 2016
SAB member Bruce Wentworth provides a brief update from the FSH Society Patient Connect Conference.