Oct 16, 2022, 3:27 PM
Friends of FSH Research is calling for grant proposals now for final submission by the end of January 2023 with funding in March 2023.
Oct 4, 2022, 9:10 AM
The mission of Friends of FSH Research is to accelerate research that will help find a treatment or cure for FSH muscular dystrophy. This strategy sometimes requires us to fund unique, novel and potentially risky research pilot projects.
Nov 1, 2020, 12:10 PM
A call for research proposals.
Jul 23, 2020, 4:22 PM
A grant to Drs. Statland and Tawil in support of a multi-year study.
Feb 7, 2020, 2:00 PM
Our latest call for research proposals.
Apr 2, 2019, 11:09 AM
$350,000 in new grants recently funded.
Oct 5, 2018, 1:00 AM
Our latest Request For Proposals is now open for submissions.
Jul 11, 2018, 4:35 PM
Reporting on worldwide funding of FSHD research.
May 30, 2018, 10:18 AM
Exciting new research being funded both by your investments and through our co-funding partners.
May 25, 2018, 11:43 AM
As multiple drug companies pursue treatments for FSHD, there is an urgent need to define the clinical trial strategies which will hasten drug development, including creating disease-relevant outcome measures and optimizing inclusion criteria. This proposal will develop two new outcome measures and optimize eligibility criteria by testing 160 patients in 7 sites over a period of 18 months.
Feb 7, 2018, 10:03 PM
Spring 2018 Request for Research Proposals.
Pre-clinical Safety and Off-Target Studies to Support Translation of AAV-Mediated RNAi Therapy for FSHD
Jan 17, 2018, 9:47 PM
A publication from Scott Harper's lab reporting on the use of an AAV vector to test the safety of two miRNAs in silencing DUX4.
Nov 21, 2017, 8:20 PM
Reporting on worldwide funding of FSHD research.
Sep 10, 2017, 6:37 PM
Our latest RFP is now open.
Mar 24, 2017, 2:28 PM
Amanda provides brief visuals on where your funding has gone within the USA and Worldwide.
Jan 26, 2017, 12:59 PM
Latest RFP is now open.
Oct 25, 2016, 9:51 AM
Development of an in vitro model of FSHD innate immunity.
Jun 16, 2016, 5:28 PM
We are re-issuing our 2016 general call for research proposals. We are accepting any proposal that support a path toward a treatment or cure for FSH muscular dystrophy.
May 14, 2016, 4:11 PM
What should we use to track the benefits of a treatment in clinical trials for FSHD?
Apr 29, 2016, 3:56 PM
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
Jan 11, 2015, 1:12 PM
Drs. Aihara and Kyba lay out a plan towards solving the crystal structure of DUX4.
Jan 7, 2015, 12:57 PM
Dr. Wagner and a graduate student, Natoya Peart, have an innovative approach to reduce DUX4 levels.
Sep 13, 2014, 8:45 AM
Silvère van der Maarel of Leiden University was awarded €1 million from the Princess Beatrix Fund for his pioneering work in FSHD research.
Jul 16, 2014, 9:42 PM
Mar 16, 2014, 9:01 PM
In order to further promote basic research, Friends of FSHD Research invites researchers to apply for travel grants of up to $2,000.
Sep 21, 2013, 9:00 AM
Sep 1, 2013, 8:37 PM
The former FSH Scholar Gregory Block was recently awarded a 3-year MDA Development Grant for $179,994 to continue his research on Mechanisms of Wnt signaling in FSHD.
Aug 18, 2013, 7:16 PM
Friends of FSH Research and FSHD Canada Foundation are pleased to support Dr. Maura Parker’s project entitled "Generating FSHD-affected human muscle in mice for testing therapeutic strategies."
Aug 9, 2013, 7:10 PM
Friends of FSH Research and FSHD Canada Foundation are pleased to support the Galina Filippova PhD & Daniel G. Miller MD PhD project entitled "Identification of small RNAs generated from the D4Z4 Array".
Aug 9, 2013, 6:39 PM
Friends of FSH Research and FSHD Canada Foundation are pleased to support the Daniel G. Miller MD PhD & Galina Filippova PhD project entitled "Identification of Chromatin Modifier Genes Important for DUX4 Silencing."
Jul 7, 2013, 6:12 PM
Apr 19, 2013, 5:18 PM
Friends of FSH Research exists to encourage, promote and fund increased scientific and clinical research of FSHD to help advance the study and understanding of the disease, with the goals of identifying treatments and, ultimately, a cure. We invite you to submit a proposal for research that advances these goals.
Feb 20, 2013, 4:00 PM
By preventing DUX4 from being upregulated during muscle formation, we may be able to prevent further muscle wasting in patients with the disease.
Feb 6, 2013, 3:34 PM
Using model organisms to identify new therapies and to understand the pathogenesis of FSHD.
Sep 6, 2012, 12:41 PM
The chemicals Dr Kyba’s group has identified may help us to understand the chemical pathways that can indirectly inhibit the muscle toxicity associated with the DUX4 gene.
Jan 15, 2012, 10:04 AM
Recent discoveries provide us with a clearer understanding of how the genetics of FSHD translate into disease.
Nov 28, 2011, 9:36 AM
Degeneration of muscles in FHSD is associated with fatty replacement on magnetic resonance imaging.
Nov 27, 2011, 9:27 AM
Oct 31, 2011, 5:50 PM
Test selected compounds for their efficacy in preventing damage caused by DUX4 expression.