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Progress Update: Molecular Mechanism of p38 Kinase-mediated inhibition of DUX4
Sep 11, 2021
Dr. Vangipurapu provides an update on his research.
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Progress Update: Deciphering the role of aberrant protein synthesis in FSHD
Aug 9, 2021
Dr. Jagannathan provides an update on research progress.
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Progress Update: Motor Outcomes to Validate Evaluations in FSHD
Jul 15, 2021
Dr. Statland provides a second update on the MOVE FSHD Study.
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Dyne Therapeutics - World FSHD Day Panel Discussion
Jun 19, 2021
Panel discussion video with various stakeholders lead by Dyne Therapeutics.
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Clinical trial network aims to speeding up development of effective treatments for rare type of muscular dystrophy
Jun 18, 2021
Article published by University of Kansas Medical Center provides insight into work by Dr. Jeffrey Statland, partially supported through multiple grants from Friends of FSH Research.
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World FSHD Day 2021
Jun 18, 2021
World FSHD Awareness Day 202, featuring the Jones Lab free FSHD test diagnostic.
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Progress Update: Screening of FDA-approved compounds
Jun 10, 2021
Dr. Lek provides a final update to her screening grant.
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Progress Update: Optimizing the Utility of the National Registry for FSHD Research and Trial Recruitment
Jun 4, 2021
Dr. Tawil provides an update to his multi-year grant.
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Progress Update: Regulation and activity of the DUX4 transcription factor
Jun 4, 2021
Dr. Tapscott provides an update to his multi-year grant.
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Progress Update: DUX4-induced mechanisms contributing to FSHD pathogenesis
May 28, 2021
Dr. Hamm provides a final report on work performed during her Friends of FSH Research Fellowship.
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Progress Update: Clinical Trial Support at University of Washington
May 25, 2021
Dr. Wang provides a final report on the FlexFund grant, which supported multiple clinical trials at the University of Washington.
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Progress Update: Improved, accessible, and affordable FSHD diagnostics
May 18, 2021
Dr. Jones provides a final update on the funding provided for low-cost test diagnostic.
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Progress Update: CTRN International Sites
May 7, 2021
Dr. Tawil provides a final progress update.
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Dr. Chamberlain Elected to VP of the ASGCT
May 3, 2021
The American Society of Gene & Cell Therapy announces results of its vote on open positions on the Board of Directors, naming Dr. Chamberlain VP.
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Progress Update: DUX4 mRNA silencing using CRISPR-Cas13
Apr 20, 2021
Dr. Afrooz Rashnonejad provides a final update on her project.
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Progress Update: Molecular Mechanism of p38 Kinase-mediated inhibition of DUX4 Gene in FSHD
Apr 20, 2021
Dr. Rajanikanth Vangipurapu provides an update on the first year of progress.
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Washington Gives 2021
Apr 19, 2021
Give BIG 2021
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Progress Update: DUX4 mRNA silencing using RNA editing
Apr 18, 2021
Dr. Harper provides an update on his project.
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Progress Update: Base editing of DUX4 somatic polyadenylation signal
Apr 18, 2021
Darina Šikrová provides a final update on her project.
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Progress Update: Development of a Novel Tool to Measure Orofacial Strength in FSDH
Apr 17, 2021
Progress update from Dr. Johnstone regarding termination of the project.