Mar 23, 2022, 6:30 PM
Video of 2022 Research Update Meeting.
Mar 2, 2021, 10:59 AM
Friends of FSH Research hosted our annual FSHD Research Update Meeting on Saturday February 27, 2021. Recording now available.
Jun 18, 2018, 9:59 AM
Summary of progress and presentations at the June 8-9 conference in Las Vegas.
Mar 19, 2018, 10:08 PM
ENMC 25th anniversary summit - The Patient Role in Shared Decision Making.
May 18, 2017, 6:01 PM
Genea Biocells scientists presented work from four disease modeling projects.
Dec 1, 2016, 11:51 AM
Lay summary for the ENMC Workshop.
May 23, 2016, 4:44 PM
Report of FSHD Summit held in Portland, Oregon, February 29 to March 1 of 2016.
Apr 29, 2016, 3:56 PM
The European Neuromuscular Centre (ENMC) has awarded a grant to discuss expanding the core set of data that is collected within those registries.
Apr 15, 2016, 2:53 PM
Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
Mar 17, 2015, 2:58 PM
FSHD was a hot topic at the MDA scientific conference in Washington D.C.
Sep 16, 2010, 3:08 PM
This brought together the various labs which have been collaborating in an effort to push ahead on FSH research through an open exchange of unpublished research.