friends of FSH Research

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Over 10 Years of Creating Hope

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

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Over $3.2 million

funded to date

$15,000,000

Attracted to research

Check Out Your Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato


Our vision: One day the diagnosis of FSH Muscular Dystrophy will be followed by "...there is a treatment."


Upcoming Events

Kendra Gives Back Party
— December 7th, 2017

Enjoy sips, sweets and making your own custom jewelry at the Color Bar. 20% of sales benefit FSHD research.

Latest News

Tips for Air Travel with a Power Wheelchair

— September 26, 2017

Howard Chabner addresses issues of air travel with a power wheelchair.

BETi Compounds Alter DUX4 Expression

— September 22, 2017

Amy Campbell and Fran Sverdrup have recently published a paper on initial results of a screen for compounds that…

September 2017 RFP

— September 10, 2017

Our latest RFP is now open.

World FSHD Day Proclamation

— June 20, 2017

Washington State Governor Jay Inslee proclaims June 20th "FSHD Awareness Day."

Friends of FSH Research recognizes local researchers

— June 8, 2017

Since 2004 efforts have been made locally to infuse the Seattle research community with funds for FSHD research.

 
 

Ask the Expert

Therapy Q&A

by Amanda Rickard

Interview of Dr. Joel Chamberlain regarding her lab's work on therapy development.
to read more...

Champion Spotlight

George & Lynn

by Terry Colella

George & Lynn's commitment to Friends of FSH Research is a natural fit due to their common goal of basic research.
to read more...