Accelerating Research Since 2004

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Latest News
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May 3, 2025
Updates on Aim 1 & 2 during year 2.
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Apr 27, 2025
First year report.
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Apr 10, 2025
Year one report on progress.
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Mar 19, 2025
Final project report on global genetic diversity.
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Jan 27, 2025
Initial update on grant progress.
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Jan 27, 2025
Final grant report.