Newsletter: 2026 Research Funding exceeds $1M!


The latest news from Friends of FSH Research:

1. '26 Research Funding exceeds $1M!
2. "Gatsby's Garden Party" is Feb 6th.
3. Donate to support this vital research.


Better  World Logo

Research Funding for 2026 Exceeds $1M

THANK YOU!
To all our supporters and partners.
Your donations funded $1,107,000 in Research Grants
in 2026!

Grants were issued in the United States to The Fred Hutch - Seattle, St. Louis University, The University of Utah, Histone Therapeutics - Seattle and Springbok Analytics - Virginia. 

International Grants were issued to Leiden University - Netherlands, Newcastle University - England, Universita Cattolica - Rome, Kyoto University - Japan, and Aix Marseille University - France.

Read below to learn more about the grants to 
Leiden University
and Saint Louis University. 




Could therapies that have already gone through clinical trials for other diseases be used to treat FSHD? 

Research funding from to Drs. Matthijs Vlasveld and Silvere Van Der Maarel at Leiden University aims to test whether ATR-258, a next-generation beta-2-adrenergic receptor agonist that has been tested previously in clinical trials for other diseases, is effective in silencing DUX4 and could be a candidate for treatment of FSHD. 

Click here to learn more about this grant


Why is it that some FSHD muscle cells turn on DUX4 and others do not?

Work that we have recently co-funded with the Chris Carrino Foundation being conducted in Dr. Fran Sverdrup's lab at Saint Louis University aims to tackle this question, then test whether it can be used to find new ways to treat FSHD.

Click here to learn more about this grant


Click here to learn more about all our 2026 grants.

None of this would be possible without your support.

Thank You Again!


Coming in February, 2027!

Save the Date 2027


Thank You to everyone who
contributed to our success!

Help continue this important work.

Donate Today

Does your company have a gift matching program?
Please submit your donations for matching.


100% of your donations go directly to fund FSHD research.
Friends of FSH Research is a 501(c)(3) non-profit organization EIN 86-1108537.
Donations receive tax benefits as allowed by the IRS.


Send inquiries to:

Friends of FSH Research
Email: connect@fshfriends.org
Phone: (425) 827-8954
www.fshfriends.org

Copyright © 2026 Friends of FSH Research. All rights reserved.

You are receiving this email because you expressed interest in FSH muscular dystrophy research and Friends of FSH Research.

Click here to opt out of future emails from Friends of FSH Research.