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We are a designated 501(c)(3) non-profit organization, thus all of your donations are fully tax-deductible.
The development of therapies for any disease takes a lot of work and can take a long time. Friends believes that by understanding the biology of FSHD, we can strategize treatments and cures.
A key aspect of developing therapies is funding researchers to conduct experiments that incrementally unravel the mysteries of the disease, and improve the technologies that will enable treatment.
Funding organizations typically avoid risky research investments, which often makes it difficult for researchers to find funding for new ideas. Friends of FSH Research reduces project risks by soliciting and reviewing proposals that support our pipeline, by having a quick turn-around time on the review process, and by having open communication about progress with our Scientific Development Director and our Scientific Advisory Board. By working together with groups of researchers, we establish the collaborative culture necessary to accelerate research.
Because our organization is highly risk tolerant we focus our funding efforts on transformative ideas that will attract additional outside funding and help build our knowledge base.
In order for a researcher to participate in our RFP process an account must be created (select Register here! on the login page). Once in place, permission to access the RFP material within the Research Portal Page will be added and you will be notified.