friends of FSH Research


ENMC Conference Travel Grants

Investigators: Hugh JS Dawkins and Richard Hugh Roxburgh PhD FRACP

A grant to cover travel and lodging for ENMC's Global FSHD Registry Framework: Stakeholder workshop which will revise the core data elements and standards of care for clinical trial readiness and recommendations on registry structure.

Although a relatively small grant, that lack of funds was standing in the way of more complete representation by stakeholders worldwide. Friends is able to help in situations such as this, providing key funding in short order, making optimum use of your generous contributions.

See Lay Report

Grant Information

Date awarded: Aug 31, 2016
End date: Aug 31, 2016
Amount awarded: $4,500

Hugh JS Dawkins
Office of Population Health Genomics

Richard Hugh Roxburgh PhD FRACP
Senior Lecturer in Medicine
University of Auckland