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Wellstone Research Update

A discussion on recent research advances at the Hyatt prior to the Annual Auction.
Please join the Seattle Wellstone Center along with Friends of FSH Research in a Research Update at 1pm to 4pm on January 27, 2018 prior to the auction. We will discuss recent… http://fshfriends.org/blog/wellstone-research-update/

Progress Report: Xenograft Mouse Model

Dr. Bloch provides a brief update of his progress on a xenograft mouse model.
by Robert J Bloch PhD See grant: A Xenograft Model of FSHD for Testing Therapeutics We have been making good progress in our development of methods to generate pure, functiona… http://fshfriends.org/blog/progress-report-xenograft-mouse-model/

Progress Report: FSHD myofibers cultured from human xenografts

Dr. Robert Bloch provides an update on his research into xenografting.
by Robert J Bloch PhD See grant: FSHD myofibers cultured from human xenografts Our research is devoted to creating mice that have human skeletal muscles, and then using them to… http://fshfriends.org/blog/progress-report-fshd-myofibers-cultured-human-xenografts/

"FSHD in 2016: Catalyzing Change in the Research Community" pre-auction event

A discussion of the current research projects and informal discussion with Friends of FSH Research
Join us for discussion of current projects in FSHD research. Meet new people and greet friends at the  "FSHD in 2016: Catalyzing Change in the Research Community"  pre-auction ev… http://fshfriends.org/blog/fshd-2016-catalyzing-change-research-community-pre-auction-event/

Silencing DUX4 at the source

A new study suggests it may be possible to re-silence the DUX4-containing DNA array.
Dr. Jong Won Lim is a Friends of FSH Research Fellow at the Fred Hutchinson Cancer Research Center in Seattle.  He is mentored by Dr. Stephen Tapscott and Dr. Galina Filippova, an… http://fshfriends.org/blog/silencing-dux4-source/

Research Update: Dr. Daniel Miller searches the blood for signs of FSHD.

At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data on biomarkers in blood (serum) of people with FSHD
At the MDA scientific conference held in Washington D.C. in March, Dr. Daniel Miller presented his unpublished data on biomarkers in blood (serum) of people with FSHD. This pilot … http://fshfriends.org/blog/research-update-dr-daniel-miller-searches-blood-signs-fshd/

DUX4: No Nonsense

It's tough to put our finger on exactly why it's bad to have DUX4 around. A new paper sheds light.
Dr. Robert Bradley is a young faculty member at the Hutch in Seattle. He's particularly savvy at computational biology - as evidenced by his background in mathematics and physics, … http://fshfriends.org/blog/dux4-no-nonsense/

Research Update: Tapscott Lab

The Tapscott lab is entering the final year of a four-year grant. Let's see how they are doing.
In 2011 we issued the largest grant in our organization’s history to the lab of Stephen Tapscott at the Fred Hutchinson Cancer Research Center .   The grant was a commitment of $5… http://fshfriends.org/blog/research-update-tapscott-lab/

Research Funding: Dr. Maura Parker will improve cellular and animal models of FSHD

Dr. Parker has had her funding renewed based on approval of a progress report and submission of a new grant for the project's next steps that broadens the scope of impact of her work.
I’ve always been in awe about how much we know about the immune system. In fact, one of my earliest mentors impressed upon me that our knowledge can be attributed to how easy it i… http://fshfriends.org/blog/research-funding-dr-maura-parker-will-improve-cellular-and-animal-models-fshd/

Research Funding: Dr. Eric Wagner aims to stop DUX4 from being made

Dr. Wagner and a graduate student, Natoya Peart, have an innovative approach to reduce DUX4 levels.
Friends of FSH Research and FSHD Canada are excited to announce that Dr. Eric Wagner and a graduate student in his lab, Natoya Peart, have been awarded a two-year grant in the for… http://fshfriends.org/blog/research-funding-dr-eric-wagner-aims-stop-dux4-being-made/

Extracting the Big Picture from the 2014 International FSHD Meeting

This past weekend, the International FSHD Research Consortium was held in San Diego alongside the American Society for Human Genetics Annual Conference.
This past weekend, I attended the International FSHD Research Consortium. The meeting was held in San Diego alongside the American Society for Human Genetics Annual Conference. Th… http://fshfriends.org/blog/extracting-big-picture-2014-international-fshd-meeting/