Spring 2018 Request for Research Proposals.
Friends of FSH Research is a Seattle-based non-profit that has been investing in FSHD research for over 13 years (www.fshfriends.org/research). Our mission is to ultimately find a… http://fshfriends.org/blog/spring-rfp/
Slide decks for Dr. Tapscott & Dr. Wang from the 27-Jan presentations.
At the request of many participants of the Wellstone FSHD Patient Day update, which was held from 1-4pm on the day of the Annual Auction, we have obtained copies of some of the pr… http://fshfriends.org/blog/research-presentation-slides/
Annual Auction for FSHD. NEW RENTON LOCATION.
You are cordially invited to
Together investing in a cure for FSH muscular dystrophy
RENTON Hyatt Regency Lake Washington Grand Ballroom1053 Lake Wash… http://fshfriends.org/blog/royal-affair/
A discussion on recent research advances at the Hyatt prior to the Annual Auction.
Please join the Seattle Wellstone Center along with Friends of FSH Research in a Research Update at 1pm to 4pm on January 27, 2018 prior to the auction. We will discuss recent… http://fshfriends.org/blog/wellstone-research-update/
Have your Giving Tuesday donations matched through facebook and The Gates Foundation.
As you have likely heard, on Giving Tuesday facebook & The Gates Foundation are each providing $1 million in matching funds. It seems like an opportunity not to pass up.
My ult… http://fshfriends.org/blog/giving-tuesday-2017/
Chronic Pain Has a Strong Impact on Quality of Life in FSHD.
A research paper on the characteristics and impact of pain on quality of life (QoL) in patients with facioscapulohumeral dystrophy (FSHD) was recently published in Muscle & Nerve … http://fshfriends.org/blog/chronic-pain-fshd/
Pre-Auction Table Captain/Sponsor Raffle
As a reward for organizing or paying a full table of ten (10), your name will be entered into a drawing for a certificate good for one (1) night’s stay at the brand new Lake Washi… http://fshfriends.org/blog/keep-calm-its-raffle-time/
Scott Q. Harper, PhD presents emerging molecular therapies for FSHD at FSHD Global event.
This video was produced by FSHD Global Research Foundation.
Dr. Scott Q. Harper recently presented a talk titled Emerging Molecular Therapies for FSHD at the annual Science Wee… http://fshfriends.org/blog/scott-harper-science-week/
Scott Q Harper, PhD reviews work at his lab at Nationwide Children's Hospital.
This webinar was produced by FSH Society.
Scott Harper reviews current work at his lab directed at molecular therapies for FSHD. Both Friends of FSH Research and FSH Society su… http://fshfriends.org/blog/emerging-molecular-therapies-fshd/
Leo H Wang, MD PhD provides a layman's description of the clinical features and molecular biology of FSHD.
Leo H Wang, MD PhD and Associate Professor in the Department of Neurology at the University of Washington provides a description of both the molecular biology of FSHD and clinical… http://fshfriends.org/blog/laymans-description-fshd/
Enjoy sips, sweets and making your own custom jewelry at the Color Bar. 20% of sales benefit FSHD research.
A perfect day for holiday shopping! Enjoy sips, sweets and making your own custom jewelry at the Color Bar! December 7 | 6pm — 9pm
Kendra Scott — Bellevue Square 179 Belle… http://fshfriends.org/blog/kendra-gives-back-party/
Howard Chabner addresses issues of air travel with a power wheelchair.
Reprinted with permission from original article (Sep-2017) by Howard Chabner. Howard writes articles on travel and accessibility.
I have facioscapulohumeral muscular dystrophy … http://fshfriends.org/blog/tips-air-travel-power-wheelchair/