friends of FSH Research


Ways to Volunteer

Friends of FSH Research depends on volunteers for almost every aspect our work. Volunteers bring energy and new ideas, and have the satisfaction of actually making a difference.

If you are interested,  send an e-mail to

Serve on our board

If you are passionate about making a large impact on medical research, have leadership experience, and are keen to help our organization fulfill it's mission you might consider serving on our governance board.  Please fill out an application today.

Serve on a committee

Auction Committee


Our auction is the must attend event of the year in the Pacific Northwest, and is our largest source of revenue for funding innovative medical research. An event of this magnitude requires volunteers on all levels. 

Contact Terry at

Fundraising Committee

Our fundraising committee helps organize our annual campaign, events, and all non-auction revenue. 

Science Committee

Our science committee helps carry out our scientific agenda, ensuring we are performing due-diligence and accurately reporting our research funding.

Run a fundraiser

contributeIf you live outside of the Seattle area (or in it) there is no better way to help us towards a treatment or cure for FSHD than to help us organize a fundraising event. Please call us or e-mail us, and we'll help you achieve success in fundraising with our best-practices guidelines.