World FSHD Day Proclamation

June 20, 2017 marks the 2nd annual World FSHD Day, and we’re pleased to share this Proclamation from the State of Washington acknowledging it as “FSHD Awareness Day”. The word is spreading and voices are being heard on behalf of FSHD, all of which bring us closer to the day when a diagnosis of FSH Muscular Dystrophy will be followed by, “there is a treatment.” Thank you to everyone who is advocating, supporting, and investing in research.

State of WA Proclamation