friends of FSH Research

Tagline

World FSHD Day Awards Reception

Posted by Bonnie DeCaro-Monahan on May 1, 2017

World FSHD DayAwards Reception

Tuesday, June 20, 2017
1:00 to 2:00pm
U.W. Medicine South Lake Union Campus in Seattle
RSVP to Bonnie

Address for the U.W. Medicine South Lake Union Campus is:
850 Republican Street
C Building
(Orin Smith Seminar Room)
Seattle

Join us as we recognize the researchers and their teams who are working tirelessly toward finding a treatment and a cure for FSHD. Cake, coffee, and tea will be served.

Help spread the word about World FSHD Day! Here are some tools:

orange smilePDF Orange Slice Selfie
PDF Social Media Promotion (Word Word format)
jpegIcon World FSHD Day Logo
PDF Researcher Awards Press Release

Social media is a fast way to spread news! Help raise awareness about FSH Muscular Dystrophy through your own social media channels. Here are some ideas to make it easy (also available in PDF PDF and Word Word format, along with the jpegIcon World FSHD Day Logo):

Facebook posts:

  • Mark your calendars! June 20th is #WorldFSHDday! Learn more about this most common form of #musculardystrophy at www.fshfriends.org.
  • Print your PDF orange slice selfie and post a photo of yourself with your "orange slice smile" with a caption saying "Wearing my orange slice selfie in honor of all those with #FSHD who cannot smile."
  • Join me in supporting over ½ million people suffering from #FSHD. Go to www.fshfriends.org and join their circle of friends to further research in pursuit of a cure!

Tweets on Twitter:

  • Mark your calendars! June 20th is #WorldFSHDday to unite everyone across the globe to support @FSHresearch for a cure!
  • Print your PDF orange slice selfie and post a photo of yourself with your "orange slice smile" with a caption saying "In honor of all those with #FSHD who cannot smile. @FSHresearch = a cure = smiles!"
  • Join me and post your own orange slice selfie for #WorldFSHDday. Print one out at www.fshfriends.org/blog/world-fshd-day-awards-reception/.
  • What if you were diagnosed with a disease that had no treatment or cure? Be part of the solution and invest in a cure through @FSHfriends.

Instagram Posts:

  • Print your PDF orange slice selfie and post a photo of yourself with your "orange slice smile" with a caption saying "In honor of all those with #FSHD who cannot smile. Join @FSHfriendsorg in pursuit of a cure!"
  • What if you were diagnosed with a disease that had no treatment or cure? Be part of the solution and invest in a cure through @FSHfriendsorg.