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World FSHD Awareness Day

Posted by George Shaw on May 16, 2016

World FSHD Awareness Day

World FSHD Awareness Day

Friends of FSH Research, along with the international alliance FSHD Champions, of which Friends is a founding member, has declared June 20th World FSHD Awareness Day.

On the note of Awareness, Lexi Pappas kindly gave permission to post her 3 minute speech on Living with FSHD for her Public Speaking Colloquium Preliminaries at school.