friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

FSHD advocate and para-athlete visits “Good Morning America”.

Posted by Dr. Gregory J Block on December 23, 2014

Carlos Romero visited “Good Morning America” in New York City this Tuesday morning to discuss his incredible and inspiring story.   

If you’ve not met Carlos, he is an outspoken advocate for FSHD research and hopes that his story will help spread awareness and help raise much needed funds as our field propels closer and closer to a treatment or cure.

He has overcome tremendous challenges through shear will and determination, and now competes as a para-athletic rock climber at the national and international level.  We hope you can take some time to learn about Carlos’s incredible journey.

Check out this documentary style video of Carlos journey.

Strongest of Men from Jeremy Kibbey on Vimeo.

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