friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

aTyr Pharma Reports Promising Signals with Resolaris

— December 20, 2016

Press release from aTyr

Neurogenetic Testing: The Good, the Bad and the Ugly

— December 19, 2016

UW Medicine geneticist and professor, Dr. Thomas Bird, demonstrates how genetic testing is utilized in the practice of neurology, including practical clinical examples.

ENMC Workshop on FSHD Global Registries

— December 1, 2016

Lay report for the ENMC Workshop.

FSHD Animal Model Progress

— November 28, 2016

SAB member Bruce Wentworth provides a brief update from the FSH Society Patient Connect Conference.

FSHD Registry

— November 21, 2016

Dr. Rabi Tawil discusses the National Registry based in Rochester, NY.