friends of FSH Research

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Mission Statement

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD.

Purpose Statements

  • To solicit, develop, and fund scientific and clinical research of FSHD.
  • To conduct fund raising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to help advance the study and understanding of FSHD
  • To disseminate information about FSHD and encourage additional public support for FSHD research by raising public awareness of the need for more research funding.